"My concurrent UTI"

About: NHS Lothian Western General Hospital / Urology

(as the patient),

April 2014 I had a cystoscopy at the Westernal General Edinburgh. I have had lots of procedures in the past, but, this one fell short procedurally, in my opinion. After that I started getting recurrent uti infections, which required antibiotics. and since this initial procedure I have never been infection free since. Each time a course of antibiotic finishes I have about a 2 or 3 day window before symptoms come back. My GP sent requests to be seen asap at Urology ( these requests fell on deaf ears)! ! It was 8 months of continually being ill before I was seen at the pre-arranged appointment in February.

I was sent for a couple of tests around March (another cystoscopy and ultrasound) I have been waiting since then, still chronically ill, also attending OPAT at the Western General for intravenous antibiotics daily several times (I am now immune to most oral antibiotics). I have had numerous requests sent from GPs, consultants at OPAT, and from Gynaecology.

I have called my Urologist secretary who advised me it would be July/August perhaps. I have not had any word and decided to call again this week. I was informed by another secretary that there was no foreseeable appointment for me, and I was classed as a Routine Review, whereas this should have been escalated to higher.

I am so disappointed at the treatment I have received so far and despite the numerous letters from many consultants, GPs etc I am still classed as a "Routine Review". There is nothing "Routine" about being chronically ill for the last 16 months plus. This has caused total havoc on my life and health!

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Response from Melanie Johnson, Executive Nurse Director, NHS Lothian

Dear Mara

I am very sorry to hear of your expperience and ongoing problems. If you email me your details I will try to find out what is going on and get back to you as soon as possible.

My email is melanie.johnson@nhslothian.scot.nhs.uk

Thank you for taking the time to share your comments


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Update posted by Mara (the patient)

Hi Melanie,

Thankyou for getting back to me.

I now have an update on the situation. Two days after I called Urology, and my GP has also contacted them again, I received an appointment in the post for mid August. I am perplexed by this as I was told there was no forseeable appointment for my. However I am pleased!

Can I please contact you if I have more concerns?

Thank you very much for taking time to reply, it is much appreciated,


Response from Melanie Johnson, Executive Nurse Director, NHS Lothian

Hello again

I am pleased things have moved on a little. By all means contact me again if need be.

Best Wishes


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