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Corticobasal degeneration

Posted By Lulu 927

"Corticobasal degeneration"

About: Nottinghamshire Healthcare NHS Foundation Trust / Mental Health Services for Older People – Community (City)

(as a staff member posting for a carer/relative),

My partner was diagnosed in March with a degenerative brain condition which has had an adverse effect on his speech and communication. This has been the most noticeable problem and definately the most frustrating as he has always been a gregarious, friendly character.

There is no treatment available but he has had monthly visits from the speech and language therapist in Nottingham, Margaret Metcalfe. She has been very helpful as it has helped us to understand the problem more and has give us strategies and help to improve communication. This has involved the use of words as prompts, advice on the condition as well as helping to improve his speech by creating a calm environment and recognising the causes of his anxiety / frustration.

Aside from all this it has been good to have someone from the NHS involved in his care as he does not have regular hospital / GP appointments for the condition

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Responses

Response from Helen Smith, AHP lead, Mental health services for older people, Nottinghamshire Healthcare NHS Trust 9 years ago
Helen Smith
AHP lead, Mental health services for older people,
Nottinghamshire Healthcare NHS Trust

Submitted on 30/07/2014 at 10:44
Published on Care Opinion at 11:01

Thank you very much for posting regarding your experience of receiving speech and language therapy from Margaret Metcalfe.

Your improved understanding of the condition and the strategies and suggestions that Margaret has provided has clearly had a positive impact on you and your partner.

Margaret is a highly regarded Speech and Language Therapist who has an expert level of knowledge and experience to draw upon. She also works in a way that is holistic and addresses the issues identified by the patients and carers she works with.

In terms of the support from the GP or hospital, please will you contact me on 0115 854 2234 to discuss what might be available to you both.

Thank you again for taking the time to post on Patient Opinion and feeding back the benefits of the service that you have received.

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