The website still describes a NICE 2007 Guideline approach now prohibited by NICE, following review of all the scientific evidence as harmful.
It describes this review process in a 2000 page document, it wasnt exactly superficial. It is giving a ‘list as dangerous’ reputation to the clinic which might actually be practicing safe medical care to patients with ME/CFS.
It even has the name of the condition wrong, perpetuating endless confusion in documentation between ‘Chronic Fatigue Syndrome (CFS)’ and ‘chronic fatigue’ which is something completely different, a symptom of other conditions, not the complex, biomedical, multisystem disease, Myalgic Encephalomyelitis (ME)
You really need to get your act together, you cannot rely on patients’ networks to spread up to date information by word of mouth? This is 2022 not the 1960s.
"CFS/ME Service"
About: Royal Cornwall Hospital (Treliske) / Chronic Fatigue/ME Royal Cornwall Hospital (Treliske) Chronic Fatigue/ME Truro TR1 3LJ
Posted by Random (as ),
Do you have a similar story to tell?
Tell your story & make a difference ››
Responses
See more responses from Shelley Jackson
See more responses from Shelley Jackson