"Very poor level of advice and care following a long-awaited appointment"

We finally received a date for a long-awaited appointment for our 10-year old daughter to be assessed at Friston Paediatrics, Eastbourne.  She has developed, at times quite severe, tics (possibly Tourettes).  Prior to this appointment, our daughter had seen a Clinical Psychologist for a period of treatment around anxiety. The Doctor was excellent and her input was really helpful for our daughters overall well-being. So, when the appointment with Friston paediatrics finally came through (following a year or more wait) we were looking forward to speaking to experts who could offer further insight into our daughters Tics and/or related (possible) Neurodevelopmental conditions. Unfortunately, following this appointment we feel rather confused and distraught at the advise and care afforded our daughter by the Doctorin question. 

In the first instance, it was clear that the Doctor had not consulted previous information relating to our daughter (we presume assessment notes of the psychological treatment had been passed on) and consequently was totally unaware as to why they were seeing our daughter. Following a very brief conversation with our daughter, lasting no more than a minute, they confirmed that our daughter has Tourettes. Surely, a final assessment for this condition requires a more thorough investigation? They then questioned why we had been sent in the first place as there was not much they were able to do.

We stressed this appointment had been scheduled in for some time and we were hoping to gain further expert insight relating to the health of our daughter. In response, the doctor informed us of Autism specialists based in London (they insisted there were no local services) and advised we are referred to them, and that the likely waiting time would be 18-24 months. They also stressed the level of support available in the school system. Again, we questioned the purpose of this appointment, and the doctor insisted all they were able to do was to effectively 'rule-out' any underlying physical and psychological factors.  They booked our daughter in for Blood test and an MRI (albeit reluctantly).  

We discussed with the doctor how we still felt in the dark as to a) a diagnosis relating to our daughters health and b) our options to support her (beyond waiting to be referred to the autism specialist team in London some years down the line). Again, the Doctor appeared reluctant and insinuated our appointment had come to an end.

I felt obligated to write this message because we feel deflated from the lack of attention given to our daughters health by the Doctor in question and the ongoing confusion as to who we can approach to gain the necessary expert insight that will support our daughter going forward. 

We booked in for blood tests approximately one month ago and are still waiting for results - we were informed that results would be available within a week or two.  I have messaged Friston Outpatients and still awaiting reply.  

I hope someone out there is able to reply as we feel rather lost