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"Continuity of care"

About: Royal Cornwall Hospital (Treliske) / General medicine

(as a service user),

Continuity of care. I am sick and tired of having to explain the same things over and over to different doctors. I feel that previous doctors have apparently even lied on my notes.

I take a medication that is used as far as I am aware both as a curative and prophylactic medication, which has negative side effects and no viable alternative.

I have been told it is perfectly acceptable to only use it as and when I feel I need it by one doctor, but now others have told me than if I'm not taking it every day despite the negative side effects then it is like I am not taking it.

This binary attitude to the medication seems reductive in the face of the fact I was told this was fine by other doctors. It now feels as if I have been labelled as a patient who doesn't take medication. I feel this is pigeon holing and insulting as I worry it may effect other future care decisions even though it is a misrepresentation. If I could actually see the same person every time this would not happen.

I am angry that when I called for the appointment, I specifically asked which doctor I would see, and was given the name of one I'd seen before. When I arrived I was told I'd see a different one, and it feels as if my dismay at this fact was simply dismissed.

I understand the reasons for the surgery style system, but I feel they are simply not in the best interests of patients in general, and especially patients like myself with specific personality type disorders (Asperger's autism).

Overall I understand that the seeing a different doctor every time system is unlikely to change. I would very much appreciate it if a discussion could be had amongst the respective practitioners to come to a consensus on whether me taking the medication as and when required is acceptable, given that it has always has the desired results.

I would also appreciate the removal of, in my opinion, the reductionist and insulting notes on my patient record.

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Responses

Response from Jess Saunders, Patient Engagement and Feedback Coordinator, Patient + Family Experience Team, Royal Cornwall Hospitals NHS Trust 2 years ago
Jess Saunders
Patient Engagement and Feedback Coordinator, Patient + Family Experience Team,
Royal Cornwall Hospitals NHS Trust
Submitted on 12/04/2022 at 18:17
Published on Care Opinion at 18:17


picture of Jess Saunders

Dear Vaseth,

Thank you for taking the time to share your story with us. I am sorry that you have been receiving such conflicting information about your medication, I can understand how confusing and unhelpful this must be. I can see how having a different doctor every time you are seen and having to explain your medical history time and time again must be frustrating for you as well. If you would like the Patient and Family Experience team (Complaints) to investigate this further for you, please get in touch with them using the details below:

Tel; 01872 252793

Email rcht.patientexperience@nhs.net

They will want to help you, and if you do decide to contact them, you can just let them know you have posted your experience on Care Opinion so you don't need to go through all the points again - I have already shared the feedback with them so they are aware.

Thank you again for taking the time to share your story with us, I am sorry that your experience so far of the department who provide your care hasn't been a positive one but I do hope we can look into this further for you.

Best wishes,

Jess

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