"We still don't know what's wrong with him"

It was a awful experience..My brother was admitted into hospital with symptoms of a facial drop. No stroke showed up. But had other issues going on. With his heart, diabetes and bladder. The assessment unit was brilliant. But going into ward 36 was very much different. Doctor said his echo was good and we told him he didn't have a echo as it was cancelled. The doctor proceeded to insist that he did, as they have the results. I told him I have the letter to say it was cancelled then a letter we received the following day that was a copy for his doctor saying he had attended and everything is all good and look forward to seeing him with his mother next year. Our mother passed away two years ago. Then another letter the following day again saying the appointment for March 2022 was also cancelled and would instead be a telephone consultation. They then tried to do a echo, but said there is a shadow there. And has to get a camera down to get images. That information wasn't passed on to me.

I look after my brother as he has learning disabilities and sometimes doesn't understand everything. He had a catheter put in when in the assessment unit as his bladder wasn't emptying, but a couple of days later he was in pain with it and asked if he could get it removed. But they said no. He was upset with this so they told him if he didn't persevere with it they would take it out and give him another one. Doctor had to phone me to calm him down. That's how stressed he was. He was later discharged. They haven't told me what was wrong with him. They never informed the district nurse of the dosage for his insulin, the nurse had to phone the ward to find out. Never told me Cordia was set up. The district nurse had to tell me. My brother was given a bottle of aspirin which he was to take in with his meds, no one had mentioned this.

My brother can't read or write. And cordia cant give him that if not in a dosage box. So communication was so important. When arriving to pick my brother up from the ward I was told to wait in the stairway as ward was closed due to covid. I waited and waited till a nurse came out and asked why we were there. The nurse told us my brother was waiting for us to arrive. It was never passed on that we had arrived. Like I wasn't told when the ward had a covid outbreak. They waited till I arrived for my visit with my brother. And said they were to busy to phone me. Phoned next day to ask for visit was told then about the outbreak. Said he would be upset that I wasn't visiting and they said they would set up a zoom call as my brother doesn't understand how to work technology. I never got this call. He had a awful experience. The food was a total disgrace. Cold quiche for lunch most days then cold egg salad. I still don't know what's wrong with him apart from his diabetes has escalated. He had a pulmonary valve replaced many years ago. They told me he didn't, and that I would be too young to remember this, as they thought my brother was way older than me. My brother was born with this because my mother caught German measles from me when she was expecting. That's why he has learning disabilities and had this value replacement. So I asked about this because I was concerned because it was done so long ago and was worried it was starting to fail. I am no further forward on my concerns. Doctor thought it was Noonan syndrome has they couldn't find his records, but said it was more like cerabal palsy he had, that's what his GP told me when I took over looking after him when my mother passed away. So my brother is absolutely worried sick if he needs to go back into hospital and so am I. I know the NHS has been through alot but there is no excuse when a person comes home feeling as though he was in prison, and being afraid of going back.