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"Stoma Care - made dark days brighter"

About: Older People’s Services / Stoma Nurses

(as the patient),

I have had to avail of the NHS heavily for the past 16 years and do not want to know where I would be without them. Recently, following surgery to remove my bowel and be fitted with a permanent stoma bag because of the effects of Crohn's disease, I was told that there had been a cancerous tumour in my bowel that was hidden and I would need chemotherapy. 

My mood took a turn for the worst to say the least. I was introduced to my stoma nurse, who came to my home for the first while, and she lifted me straight away with her warmth, understanding and knowledge of what I would need, making everything seem that bit easier.  As the months passed I was invited to clinics and began to see it as a afternoon out for a bit of craic (believe me, in the midst of a pandemic ANYTHING can be viewed as entertainment) where I met two more of my wonderful stoma nurses who have helped me more than they can imagine.  

I remember one day when I was lucky to have two of them caring for me.  I was in a bad place and struggling with coming out the otherside of chemo; feeling overweight,  lethargic and a bit useless.  Those women listened to me cry, made me laugh and showed me empathy and kindness beyond anything I had experienced before. Their reach is further than the bag stuck to your abdomen,  they care about your head and your heart too.  They made many dark days lighter and I know I'm not the only one they have made feel this way. 

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Martha Magee, Macmillan Information & Support Manager, Macmillan Information and Support service, WHSCT 2 years ago
Martha Magee
Macmillan Information & Support Manager, Macmillan Information and Support service,
WHSCT
Submitted on 23/06/2021 at 16:08
Published on Care Opinion on 24/06/2021 at 09:56


picture of Martha Magee

Hi Nem89,

My name is Martha and I am the Macmillan Information & Support Manager for the Western Trust. I would like to thank you for taking the time to tell us about your personal experience of the stoma care service. This will mean a lot to the staff to hear that they go beyond their role to ‘care about your head and your heart’, especially in these challenging times.

I will share your positive experience with the team of nurses to make them aware of your feedback and how their empathy supported you in ’the dark days’.

Many thanks and take care.

Martha Magee

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Response from Fiona Quigley, Stoma Nurse Specialist, Primary Care Older People, Western Health & Social Care Trust 2 years ago
Fiona Quigley
Stoma Nurse Specialist, Primary Care Older People,
Western Health & Social Care Trust
Submitted on 24/06/2021 at 02:09
Published on Care Opinion at 09:53


Hi Nem89!

Thank you for sharing such a personal and positive experience about our nursing service. It is lovely to hear your experience reflects our nursing values (kindness, empathy and a little humour!).

I will share your comments with my fellow stoma nurses who will appreciate your kind comments. We are privileged to share in your journey and delighted we make "dark days lighter".

Thank you for making us smile during the pandemic too! We are in this together with our "heads and hearts!"

kind regards Fiona

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