"Not suitable care for a person with a rare…"

My mother was admitted in September and October for just over 1 week on both occasions. Both times she has left the hospital stressed and shaken due to the lack of understanding of how to accommodate and treat a person who has Posterior Cortical Atrophy. Considering this is a dementia-friendly hospital, I would expect all working there to have a (very) good understanding of the many different dementias, but my mum has, again, left the hospital worse mentally (as PCA is a cognitive disorder) than before she was prior to being admitted. Posterior Cortical Atrophy impedes the brain from processing visual and auditive information, causing confusion, disorientation and stress. When in both wards trying to find the bathroom and the toilet seat, or waiting for medication, amongst many incidents, she has struggled without the needed, apt care to tailor for someone with PCA. Shared wards are not suitable for a person with Posterior Cortical Atrophy, she has not slept well due to all the noises from machines buzzing/beeping, and patients and staff talking. The bad communication in regards to her discharge this time caused both her and I stress, "tomorrow", which came and went, "tomorrow" to both her and me was cruel... 8 days later after continued daily "tomorrow" she is finally home.

More education/training in how to treat persons with rare dementias like Posterior Cortical Atrophy needed, and, too, better communication to such persons and their families. Contact Rare Dementia Support for free training.