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"Looks like im moving surgeries again!!"

My very first telephone consultation and im left angry and frustrated its terrible how again the excruciating pain i have to live with isnt taken seriously!! Why should i have to live with this fibromyalgia pain and spasms? There is a variety of combinations of medications alongside physio to help i have done research. If a dog was in this way he would be put down!! My mental health is in crisis and this isnt helping at all. I have suicidal ideations and self harm because i cannot cope. Nobody listens, nobody cares its disgraceful that heroin addicts can get methadone of the NHS yet a fibromyalgia sufferer cant get pain relief sad sad world. Everyone i know with this condition is prescribed something to ease the pains/spasms. I read that there is meds for the spasms too. In conjunction to the fibro pain im dealing with incredible facial, ear, neck and head pain due to temperomandibular joint syndrome. When i was in Scunthorpe stroke unit the nurse in charge of the ward on my last day said she could not believe all they had me on was paracetamol and codeine after seeing me agitated and distressed with the pain and the difficulty walking she said that i needed to be prescribed morphine but sadly she never got to sort out the script with a dr before i left. I so wish she was here to tell you what i need im at my wits end if i wasnt bad i wouldnt bother fighting like i am for every bit of help and relief its disgusting i shouldnt have to fight these battles at all

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Responses

Response from Jo Loughborough, Senior Nurse, Patient Experience, Northern Lincolnshire and Goole NHS Foundation Trust 3 years ago
Jo Loughborough
Senior Nurse, Patient Experience,
Northern Lincolnshire and Goole NHS Foundation Trust
Submitted on 10/11/2020 at 13:23
Published on Care Opinion at 13:23


Good afternoon,

Thank you for taking the time to feedback on the care you received. We're sorry to hear of your experience. We would really welcome having the opportunity to look into what happened and respond to the points you have raised. To do this we need more detail and some way of contacting you. Please call 03033 306518 or email: nlg-tr.PALS@nhs.net and we will do all we can to help.

Kind Regards

Jo Loughborough

Senior Nurse Patient Experience

Northern Lincolnshire and Goole NHS Foundation Trust

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