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Care Opinion

Having a stroke.

Posted By pistolpete

"Having a stroke."

About: Nottingham University Hospitals NHS Trust - City Campus / Neurology Specialist Therapy Services / Community Stroke Team – South Notts

(as a service user),

I had a bleed on brain stroke in July 2019. Prior to this I had been really fit and active, playing tennis and golf regularly,also doing 30 minutes exercise daily before breakfast. I was in the city hospital for two months before returning home, receiving some physio and occupational therapy there. When I left, I was able to walk a short distance with the aid of a splint a stick.

The standard of help was good, but while there, I picked up scabies, a chest infection and head lice. On release, I was referred to the Stapleford stroke support team, from whom I received physio and occupational therapy. Things were progressing well, I was able to walk through my front door and down the road for about fifty yards. Then came lockdown! since when support has been withdrawn.

During lockdown the first anniversary of my stroke occurred (which meant that support would be withdrawn anyway, this meant I missed out on about five of the twelve months support. Worse still it meant that all the objectives and future targets also went, which was a big mental blow. Surely the support period should have been extended by the lockdown period. The level of support I received from Stapleford was excellent and I made real progress under them, just disappointing that my ultimate target of being able to drive again wasn’t reached and that I have no pathway to it,

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Responses

Response from Stroke Association 3 years ago
Stroke Association

Submitted on 05/08/2020 at 10:44
Published on Care Opinion at 10:44

Comment from the Stroke Association

Hello.

We’re sorry to hear about your stroke and that you feel you missed out on further support due to lockdown restrictions.

The hospital may look into your concerns, but if you’re still unhappy, you could get in touch with the Patient Advice and Liaison Service (PALS). PALS can help people to resolve health-related concerns and answer any questions they have about NHS care or treatment. You can call PALS on 0115 993 4542 or email them at PALSandComplaints@nottshc.nhs.uk

Here at the Stroke Association, we’re here for anyone who’s been affected by stroke. You might want to know more about stroke and its effects, be looking for practical information and support, or simply need someone to talk to. That’s where we can help. If you’d like to talk to us, the Stroke Helpline is open:

Monday, Thursday and Friday from 9.00am to 5.00pm

Tuesday and Wednesday from 8.00am to 6.00pm

Saturday from 10.00am to 1.00pm

The helpline number is 0303 30 33 100. You can also email us at helpline@stroke.org.uk.

We have a range of services across the UK, providing information, advice and support to stroke survivors and their families. You can find out if there’s a service in your area from our website www.stroke.org.uk/finding-support

Finally, you can find lots of information about stroke on our website at www.stroke.org.uk.

I hope this is helpful

Stroke Helpline

Stroke Association staff are not medically trained and the information provided does not replace information given to you by your own healthcare provider.

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Response from Claire Lee, Community Stroke Team Lead, South Nottingham Community Stroke Team, Nottingamshire Healthcare NHS Foundation Trust 3 years ago
Claire Lee
Community Stroke Team Lead, South Nottingham Community Stroke Team,
Nottingamshire Healthcare NHS Foundation Trust

Submitted on 07/08/2020 at 11:52
Published on Care Opinion at 11:52

Hello,

I am sorry to read that you are unhappy with the level of support you have received from the Community Stroke Team. This is not the standard of care that we as a service aim to achieve.

Due to COVID -19 and in accordance with the National guideline, rehabilitation is currently being offered in a different way. We were informed we were unable to provide routine rehabilitation under the lockdown restrictions, hence why your rehabilitation was stopped at the time.

However our plan under the circumstances where possible, has been to ensure that all patients had a clear rehab plan, exercise programme and management plan to enable patients to self-manage their rehab until restriction eased.

I am glad that you found the support you did receive to be excellent but I understand your disappointment at this not being able to continue beyond the 12 months post stroke period. Our plan has been to refer on to services to further assist in any ongoing goals. In terms of driving we cannot make the ultimate decision around driving ability and you should have been referred to Derby Drivability for this assessment. Unfortunately, they do have a waiting list due to COVID 19 restrictions.

We welcome feedback, both positive and negative and to help us to improve the service, I would appreciate the opportunity to speak with you to address your concerns and see how we could improve things for you.

Please don’t hesitate to contact me on 0115 8440523

Thank you for taking the time to raise these concerns.

Kind Regards

Claire Lee

Community Stroke Team Lead

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