"My unhappy experiences"

At the beginning of May I was awakened from sleep with sudden onset of symptoms that I had never experienced before. These symptoms were sufficiently bad that I had to call an ambulance on 999.My initial symptoms persisted for 14 hours, then eased off, then persisted in waves for five days before stopping for about 12 hours.

During this period I was admitted to Cardiology and underwent a comprehensive battery of tests that showed that whatever was happening was not a Cardio-logical issue. This seemed accurate to me because of the way the symptoms commence.Following thorough testing and a 30 hour period of being symptom free I was discharged

I couldn’t believe it when, after only 3 hours or so at home, the symptoms/episodes recurred with the same intensity. I was readmitted and placed under the care of Endocrine department this time. They ran tests that also came back negative and I was eventually discharged following 3 days of being episode free.I was not entirely comfortable that I was once again being discharged without a diagnosis, but I accepted the opinion that this was a one off mysterious episode that had now resolved.Sadly, this was not the case; I have had several hospital admissions since. one time, I was sent home by a consultant in Acute Receiving department and told not to come back.

I had an awful episode mid June. I didn’t want to call an ambulance because of the comments made by the AR consultant. However, this was the worst episode to date and my daughter phoned an ambulance and I was once again admitted. This initial episode lasted for 18 unrelenting hours. It then progressed as previous ones have done, with lessening of symptoms and longer periods between symptoms. This time I was admitted to the care of the Respiratory ward, I suspect this is because there was no other bed available. I feel that I'm in a ward that I clearly should not be in.  my undiagnosed condition has not being given any credibility, and I have had no further testing since being readmitted.  I have on several occasions, buzzed for a nurse during an episode and either, they have not come at all or it has taken in excess of 3 hours for one to appear.  I had a serious question about medication and buzzed 3 times for a nurse to ask my questions.  I first buzzed in the morning but the nurse did not come to seem me until the afternoon. She then snatched the tablets and threw them in the bin. My next of Kin has telephoned and requested to speak to the charge nurse and the doctor in charge on more than one occasion. He was told they were busy and would return his calls. His calls have not been returned.

I am being discharged again with no explanation of why this is happening to me and feel that once again the attitude is "why are you coming in?" I think perhaps these awful episodes that lead to my BP  and HR and heart rate being high should answer that question.  I now feel that I am being passed around like pass the parcel. I feel I need someone to take responsibility and look at the overall picture. When I have a consultant saying to me that I am here because I am experiencing dizzy spells, I cannot describe the frustration; this is not why I am here and doesn’t even remotely describe the episodes and symptoms  that I have been experiencing.

Since May, I have been bouncing in and out of hospital. There is clearly something going on. I need one person to sit down with me, listen, discuss and actually work out a plan. I am consistently told that this is not Cardiology and not Endocrine so I should be reassured. I do not care what it is not...I care what it is and I need a diagnosis. I am frustrated that I am once again being discharged with no diagnosis. I just need one person to sit down, take this seriously and coordinate a plan to try and diagnose this awful, debilitating thing that is happening to me. I do not have a history of hospital admissions prior to these episodes.