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"No understanding of endometriosis"

About: Royal Sussex County Hospital

I had severe endometriosis that had recently been diagnosed and went to A&E with a ruptured large endometrioma on my ovary. I had rebound tenderness, 10/10 pain, nausea and vomiting, a fever and eventually my blood test showed inflammation. On arriving, the receptionist smirked at me when I told her what was wrong. When I eventually saw the triage nurse he told me off for not having taken an ibuprofen. For 10/10 pain and internal bleeding. I was left waiting for hours sat on a hard plastic chair, in agony. With drunk patients with minor injuries pushing past me constantly. When my blood test eventually came back showing inflammation I was finally believed and an apologetic nurse took me to a bed. A doctor came to see me and tried again to send me home with ibuprofen. I had to explain to him what an endometrioma is, what happens when it ruptures, that I needed a scan and to see a gynaecologist. More hours later, after a CT scan showed internal haemorrhaging, as I had already explained it would, an apologetic gynaecologist admitted me and I was kept in for 2 nights for pain management and monitoring my haemoglobin. The consultant said I would need emergency surgery but fortunately I had excision surgery booked in the following week with accredited endometriosis specialists in Surrey. As there are none in Sussex.

Endometriosis affects 5% of the population. It is unacceptable that there was so little knowledge of the condition amongst the staff. I had particularly severe disease, and an emergency situation, but was treated like a time waster with normal period pain. Other patients with the same problem might not have been in a position to advocate for themselves in order to get basic medical treatment. I suggest the A&E department has some training in endometriosis as well as unconscious bias training and stops dismissing female patients and ignoring their symptoms.

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Responses

Response from Royal Sussex County Hospital 4 years ago
Royal Sussex County Hospital
Submitted on 28/01/2020 at 08:28
Published on nhs.uk at 10:08


Thank you for taking the time to contact us, I was sorry to learn of your experience, this is not what we would want for our patients.

I will, of course, share your feedback with the Emergency Department, however, if you would like to discuss this matter in more detail you can contact our PALS team on 01273 664511 or at bus.pals@nhs.net.

Kind regards

Hannah Pacifico

Patient Experience Manager

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