"Extra Disability problems"

Although there appears to be concern for those of us who are disabled, this concern seems to fall away when appearing in a NHS facility itself.

For example I arrive at the Kent Oncology centre for treatment. This cancer is the last straw following a collapsed back dural injury during surgery CSF leak for 6 months in 2006. I have been disabled since then although progressing from bedbound to wheelchair to now being able to walk short distances but I cannot sit for more than an hour at best unless it is a recliner in which I spend most of my life. The centre expects me to arrive early then wait in normal chairs in that specific case for 2 hours before treatment due to bloods having to be redone. By this time I am beyond caring if I get chemo or not. 

The pain down my back , hips, legs and feet is unfair in the extreme as its is so unconsciously  given - not on purpose, just lack of , I dont know, maybe knowledge of my condition although I have told everyone. I have had a bad run with the Medical profession who injured me by accident by failing to kill the MRSA bug they installed into my stomach together with a plastic mesh requiring 2 extra operations. 

When the doctors injured my spine

my lawyers told me I had no claim as it was an accident - ok no problem but I still had to undergo 2 immediate emergency ops to seal the dura, I dont know why the first did not work plus another 2 stretching out to 6 months after the event. A heart attack followed by a open heart triple bypass followed. There were no mistakes here. Lucky

But still each appearance at a facility here it is assumed one can walk over there or here, sit for 2 hours , but facilities for disabled apart from parking are seriously lacking once one is inside the facility.  Oh they have spare wheelchairs to get you around but nowhere to catch ones breath and  lie down and recover from the  trip to the place.

I'm lucky in that my wife can drive me around but I feel terrible for her to have to spend so much time wasted on waiting and I wonder about those poor souls who have to get an ambulance to get them there.

I spend time thinking  how to correct the problem and I maintain all we people need is a small corner of the facility with a couple of beds for the seriously disabled and a couple or more of the very same recliner chairs they use in Oncology and a toilet.

When the sisters have your time slot they will know where you are.

Finally it is not only this facility the very same happens at my GP as well as the dentist where a 45 minute wait on rock hard chairs nearly had me hobbling out in agony. 

You know it is not fair on able-bodied  people either to not keep the time slot but they can understand an emergency but now it appears that is used all the time. Its just that disabled people have time limits. My bladder can handle  an hour, but push that another half an hour and I need a toilet. If I go to a restaurant  very unusual as again I cannot sit for 2 hours on their chairs either. I dont intend spelling out all the little difficulties we go through all day though.

Its just the little things.

Thank you for providing an facility to mention this