I'm a person with Parkinson's and I'm also a member of the local Parkinson's support group. As a group we don't like to complain in case our care is affected.The service in my area (North Cumbria) has gone from very bad to dismal!
We had a single consultant at Carlisle Infirmary hospital who we see for our Parkinson's who is currently not a work and one part time Parkinson's nurse.
In my opinion the service is run on a shoe string and if one member of staff is off it seems the service struggles massively to the point of collapse.
Parkinson's is a progressive condition and we need quality care and advice to stay as well as possible. I've not had a review/been seen for 14 months.
We had a speaker from Newcastle attend one of our meetings and they told us about their service. That is the service we want and deserve. Why should we put up with a second class service here in North Cumbria? We want to see some investment and stability in the service so it can run because it has appropriate staffing and resources.
I don't want anyone newly diagnosed to experience this. I would like to see more staff so the service can function better, more resources for the service to improve, better education for staff about living with Parkinson's. Please listen to your patients.
"Parkinson's Care"
About: North Cumbria Integrated Care NHS Foundation Trust North Cumbria Integrated Care NHS Foundation Trust Carlisle CA2 7HY
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