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"Nerve pain all over the body"

About: Royal Infirmary of Edinburgh at Little France / Neurosciences (DCN)

(as a service user),

Pain started a few months ago, burning going all through the body, because of that my reaction time dropped I dont feel safe driving, and every touch is painful. After many visits at my GP practice I was referred to Western to see neurologist, who spent with me 3 minutes said I need MRI and that I will need to wait in total about 7-9 weeks or scan and results. Didn't advise any painkillers, or how I should cope (I am less than 30 and have two small kids) I am not able to work or even take care of my self properly. Said it maybe "just wear and tear", I am asking how is it that wear and tear makes me so miserable. I understand that without test result they cant do much, but I was treated as some thing that surely can survive more weeks of pain. 

It has been 10 weeks, I don't sleep at night, I am not fully awake during the day and now kids have summer holidays. I feel like people which should help me don't even think I need help.

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Responses

Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian 4 years ago
Jeannette Morrison
Head of Patient Experience,
NHS Lothian
Submitted on 15/07/2019 at 16:09
Published on Care Opinion at 16:09


Dear Bavarka

Thank you vey much for sharing your feedback with us regarding the pain you are experiencing all over your body. I am really sorry to hear what has been happening and it sounds as though this is a difficult for you, especially when you have two small children.

To help us look into this for you I would be grateful if you can please contact the Patient Experience Team as we will need a few more details from you, they can be contacted on:

Email: feedback@nhslothian.scot.nhs.uk

Telephone: 0131 536 3370

Post - Waverley Gate, 2 - 4 Waterloo Place, Edinburgh

I do hope that we can help.

With best wishes

Jeannette

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