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"My partner's prostate cancer journey"

About: Guide Bridge Medical Practice Stepping Hill Hospital / General surgery Tameside General Hospital / Urology

(as a relative),

In 2017 we had an indication that my partner's brother had been diagnosed with prostate cancer. We got my partner an appointment at his GP practice in early 2018. The service received by the GP was excellent, very quick and very efficient. (Guide Bridge Medical Practice). He had his blood taken, the results showed a high PSA, he had an appointment for an MRI scan and also got his appointment to see a consultant in Urology at Tameside Hospital within 5 days. He then needed a biopsy taking of his prostate to grade the cancer. His first appointment was cancelled at the last minute on the morning of the biopsy. The second appointment took a lot to get due to administrative errors within the booking office. When we finally got the biopsy date a few weeks later, we attended, the service by the staff during the biopsy was brilliant, they were very caring and attentive.

The biopsies were damaged in testing, so we didn't get a full picture. The next step was to book a date for surgery. This was a nightmare as they didn't have a full staff at Stepping Hill, so he didn't get his surgery until mid April.The surgery took longer than expected, no explanations other than it was difficult to remove the prostate. He also had to have a transfusion. The next day he was discharged with a catheter in situ. I was shown how to give him the anticoagulant injections. We walked down the corridor to go to the car park and his catheter started leaking. No mention of this problem had been mentioned. We had no discharge papers, only a catheter passport. Fortunately with me working at Tameside hospital I had a few people I could call for advice and help, which is what I did. Stepping Hill were not very happy about this and were quite rude to my colleagues. 

The post op appointment should have been 6 weeks post surgery. It didn't happen until nearly 12 weeks. Due once again to administrative errors. After attending one appointment at Stepping Hill outpatients, I asked for my partner to be transferred back to the care of Tameside. He has had one more appointment since then. He was due for another at the one year mark. But this was put forward to May 2019 due to the mess up with the post surgical appointment error. We were waiting for an appointment in Mid May 2019, none arrived. We call up Tameside only to find out he's not been put in the system for appointment reminders in May, he now can't be seen until July. In this day and age of technology, you'd think they could get a simple appointment right? Wrong!

During this past twelve months, there has been no support offered to me. I would have thought that family of people with cancer would get this. But it wasn't offered.

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Responses

Response from Alexia Charnley, Head of PALS, Complaints and Candour, PALS & Complaints Team, Tameside & Glossop Integrated Care NHSFT 4 years ago
Alexia Charnley
Head of PALS, Complaints and Candour, PALS & Complaints Team,
Tameside & Glossop Integrated Care NHSFT

Manager

Submitted on 03/06/2019 at 10:08
Published on Care Opinion at 11:59


Good morning,

First of all, thank you for taking the time to make our team aware of the experience both you and your partner shared at Tameside Hospital and Stepping Hill Hospital. I am sorry that these comments have not been acknowledged before today.

As you may be aware, Urology is a shared service between both organisations, however the concerns you have raised regarding Stepping Hill Hospital will be addressed separately by their team.

After reading through your concerns, it is disappointing to hear that the arrangements of an appointment was not appropriately organised and this meant that your partner's biopsy appointment was not arranged in a timely manner, which caused you both anxiety. However, it is lovely to hear that when you both attended the appointment you were treated with care and attentiveness.

With regards to your concerns relating to your partner's 12 monthly review, I am sorry that this mirrors the experience you had at the start of your partner's journey. It is not acceptable that these impacted on your experience of care.

It is disappointing to read that throughout this already difficult time, that you yourself were not offered any support of guidance. Please accept my apologies that this has left you feeling this way.

We would really like to understanding in more detail of some of the specifics you raise so we can follow these up and would appreciate it if you could contact the PALS and Complaints Team. In this discussion we can obtain some further details about your partner and suggest ways in which your concerns can be addressed. The team can be contacted on 0161 922 4466 or via email palsandcomplaints@tgh.nhs.uk

Once again, please accept my apologies. We look forward to hearing from you again soon.

Kind regards, Alexia

Head of PALS, Complaints and Candour

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Response from Emma Rogers, Matron for Patient Experience, Stockport NHS Foundation Trust 4 years ago
Emma Rogers
Matron for Patient Experience,
Stockport NHS Foundation Trust
Submitted on 03/06/2019 at 17:44
Published on Care Opinion at 17:44


picture of Emma Rogers

Thank you for taking the time to leave your feedback in regards to your experience. Firstly please accept our sincere apologies for the poor level of communication and unacceptable experience that you and your husband have had from Stockport NHS Foundation Trust.


Could I ask you to contact me to discuss further. It is not our wish that any family have to overcome as many challenges as you experienced, at such a difficult time.

Once again please accept my sincere apologies on behalf of the trust. I look forward to the opportunity to meet with you and discuss the improvements we need to undertake to ensure that we learn from your families experiences.


Best wishes

Emma Rogers, Matron for Patient Experience & Quality Improvement

emma.rogers@stockport.nhs.uk

0161 419 5203

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