"Help!!!"

In October 2018 I attended my regular (in theory!) 6 month appointment at the MPD clinic at the Macmillan Cancer Centre; I was then given a further appointment for April 2019. In November 2018 I received a letter cancelling that appointment and stating they would send me another appointment. In January I began trying to contact the bookings team-I am still trying! I have been given 15 different phone numbers to ring, in addition to the 6 numbers stated on various paperwork. I have made approx. 20 calls to try and contact the "Bookings Team"; today alone I have spent 6 hours on the phone, been put through to approx 8 different people who all say it's not their department and transfer me to someone else. I am still no closer to actually getting an appointment.

Does anyone out there have any idea what I can do to ACTUALLY GET AN APPOINTMENT???

I'm afraid my heart sank when 3 years ago my treatment was transferred from the Royal Free in Hampstead (which I found very good) to UCLH, as I had very bad treatment at UCLH in 2010-2014 for kidney stones. I vowed never to go to UCLH again, but had no choice when I was referred there. I have been very disappointed with my treatment at Macmillan Cancer Centre (part of UCLH trust). The Royal Free used to check my blood (specific IGE) every 6 months and adjust my medication accordingly; in 3 years UCLH has not tested these levels at all, and I am still taking the same medication doses prescribed by the immunologist at Royal Free from the last time I saw him. (Of course none of the 15 years of treatment at Royal Free are available to UCLH, as it is a different "Trust"!).

I feel there are fundamental, systemic problems at UCLH trust, and within the NHS as a whole, that mean patient care is either nonexistant at best, and shambolic and dangerous at worst. I feel that the stress of dealing with UCLH, outweighs any benefit of going there every 6 months to have (no) treatment. I feel like giving up trying to get another appointment;Cancer is stressfull enough without having to deal with UCLH. Yet again, I've wasted a whole day and achieved nothing except stress, tears and frustration. I am a 54 year old man not prone to crying but have been in tears on a number of occasions when dealing with UCLH.

On a positive note, there is a room at Macmillan Cancer Centre, where I've gone on a number of occasions after my appointment, to stop crying and compose myself before I leave the hospital. The ladies in there have been very kind, and don't mind how long you need to recover your composure. For any patients who need it-ask at the Macmillan desk on your right as you enter the Cancer Centre-it's not immediately obvious; I was shown where it is by someone who saw I was very distressed last year.

Now I need to dry my eyes, and stop wasting my time trying to get a non-existant appointment in order to get no treatment. Maybe I'll try again next week, if I feel strong enough to deal with UCLH?