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my daughter having hydrocephalus

Posted By hydrophelcus

"my daughter having hydrocephalus"

About: Children and families services / Health visiting King's College Hospital (Denmark Hill) / Paediatric surgery

(as a carer),

My daughter's head started to get large she wasn't meeting none of her milestones I was concerned. I raised them with a health visitor from Swale health visiting that gave me no advice whatsoever I then took my daughter to the doctors to be told her heads too large she needs to be seen in kings college hospital asap we got her to kings college hospital in London she was operated on asap for water on the brain that was causing her pressure to her brain & I was told if she doesn't having this operation she will die I felt so let down & devastated health professional are meant to help with these issues not cause more pain 

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Responses

Response from Helen Knope, Performance Lead, Reimagine Team Working Support Team, Kent Community Health NHS Trust 5 years ago
Helen Knope
Performance Lead, Reimagine Team Working Support Team,
Kent Community Health NHS Trust

helping team to work in a reimagined way following the pandemic

Submitted on 01/03/2019 at 16:25
Published on Care Opinion at 16:39

Hello

We are very sorry that you were unhappy with the service you received from our Health Visiting team in Swale and that your daughter has been so unwell.

I have made the Clinical Services Manager, Public Health aware of your review and she would obviously like to explore this further with you. Please would you be kind enough to contact the PALS team using the details below and provide them with more information to enable the service to contact you?

Patient Advice and Liaison Service (PALS)

Kent Community Health NHS Foundation Trust

Tel: 0300 123 1807 Email: kentchft.PALS@nhs.net

Website: www.kentcht.nhs.uk

Thanks in advance for getting in touch.

Helen

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