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"Support received following daughter’s Crohn's diagnosis."

About: Royal Hospital for Sick Children (Yorkhill) / Gastroenterology

(as a service user),

After a horrid month of repeated visits to my GP whilst watching my 10 year old daughter worsen daily she finally ended up as an Emergency admission to the QEUH.    

Following diagnostic surgery we were very sensitively told that she had Crohn’s Disease. Whilst relieved at having a reason for her symptoms, we felt devastated that our daughter now had a chronic illness. Also having listened to the worst stories from ‘people who know someone’ we felt lost.  

However following diagnosis we were immediately made aware of the support services and introduced to the dietician team and IBD Specialist Nurses, Vikki and Lisa.   

Now discharged and in the initial treatment stage I have to inform everyone of the incredible support from Vikki and Lisa. Always available by email and making weekly telephone calls. They make us feel so cared for and safe.  

My precious daughter, obviously loved by me but so cared for by this brilliant team. I am a nurse myself and am just so proud to be aware that a fantastic support network exists.    

They have made this horrific time bearable.  

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Responses

Response from Pamela McGoldrick, Senior Organisational Development Advisor, Women & Children's Services, NHS Greater Glasgow and Clyde 6 years ago
Pamela McGoldrick
Senior Organisational Development Advisor, Women & Children's Services,
NHS Greater Glasgow and Clyde
Submitted on 21/03/2018 at 17:20
Published on Care Opinion on 22/03/2018 at 13:37


picture of Pamela McGoldrick

Dear DAM

Thank you so much for sharing your feedback on Care Opinion.

I can hear what a difficult time this has been for your daughter, you and your family.

It is, however, heart warming to hear that you have felt so supported and cared for by the IBD team and Vikki and Lisa in particular. Our teams aim to provide safe, high quality care and treatment with the patient and family at the heart of what they do. They will be delighted to hear your kind words and appreciation. The General Manager has personally passed on your feedback to the team with his own note of appreciation.

I am glad to hear that your daughter is at home now and I hope things are more settled for you all.

Best wishes

Pam

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