"Poorly treated thyroid after partial thyroidectomy"

I was given very little information and put on levothyroxine. I wasn't told that this had to be taken 2 hours away from coffee ... I felt worse over the years. My dose was doubled when I was pregnant and eventually I ended up taking over 300mcg and felt so ill. I was diagnosed with fibromyalgia some 12 years later. 

After doing a lot of research, in 2016 I made sure I'd got my vitamin d levels high, I started getting b12 shots privately as mine was low. I started taking fix acid as mine was low. Then I took Natural dessicated thyroid hormone and stopped taking levo. 

Within 2 weeks of starting NDT which I purchased privately, ALL of my fibromyalgia symptoms went. I now take some liothyronine as well as I had high reverse t3 so I don't convert. This meant I had to do further research. However, 19 months on and I would never go back to levo. 

My GP initially refused to refer me to an endocrinologist. It took some persuading. Sadly the NHS, both gp and rheumatology will not run ft3 or ft4, only TSH which is not much use to me. 

I am disappointed at this, one gp stated she couldn't run these tests as she could not be held responsible for the results, and actually told me to book private with an endo telling me it might be the best money I have ever spent

How disappointing that the NHS will not monitor bloods and I have to pay privately for them, as well as paying privately for my thyroid meds. 

This has left me in a position where I lost my career. I was pensioned off on poor health, not exclusively due to fibromyalgia which was really poorly treated thyroid. But it contributed. It also robbed me of partaking in many activities that a mother should be able to enjoy, such as watching my son play rugby. This was impossible on levo but if possible now I'm in NDT and t3. 

I feel I have been badly let down by the NHS and had I not been well educated and done my research I would still be in excruciating pain every single day.