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Mum’s potential cancer diagnosis

Posted By Loving daughter 12

"Mum’s potential cancer diagnosis"

About: East Ayrshire Community Hospital / Trauma & orthopaedics

(as a relative),

In early November Mum had an appointment with her GP to get results of a recent MRI scan she had had done in relation to falls she had been having. The GP gave the shock news that the MRI had detected some ‘suspicious looking leisons’ in her spine and that the most likely outcome is that they are cancerous. She was given a CT scan which appeared to confirm these findings. She then waited until mid-December for a bone scan which has apparently given ambiguous results. 

Mum has been passed from pillar to post and still does not know if the 3 highly suspicious leisons on her spine are indeed cancerous. To make matters worse still, it was suggested that they are secondary tumours from an undisclosed primary. 

It will soon be 3 months since the initial ‘diagnosis’ and we are no further forward. We are all understandably very concerned about what is going on and I feel that she deserves to be treated in a far more cohesive manner in order to get to the bottom of what is going on and to offer her any possible treatment before things progress any further.

What can we do?

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Responses

Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran 6 years ago
Eunice Goodwin
Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team,
NHS Ayrshire and Arran

I respond initially to most of the posts and ensure they are passed to the appropriate team whether they are compliments, observations or grumbles. It is important to make sure all issues are addressed and I try to encourage that to happen for all the posts as required.

Submitted on 30/01/2018 at 16:34
Published on Care Opinion at 21:45

picture of Eunice Goodwin

Dear Loving daughter 12,

I am so sorry, this is such a horrible position for you and your mum to be facing and I do appreciate why you are concerned. Your Mum's experience to date does appear less cohesive than we all want it to be. I don't know what the situation is with your mum but we are very keen to find that out. With limited information it is impossible to guide you in the right direction, but if you contact me, I will see what I can do to help. My phone number is 01563 826222 and my email address is eunice.goodwin@aapct.scot.nhs.uk.

Thank you so much for raising this important issue. If you contact me, we can look into the 'process' of this. I am sure we can learn from this and help your mum too.

Kind regards,

Eunice

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Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran 6 years ago
We are preparing to make a change
Eunice Goodwin
Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team,
NHS Ayrshire and Arran

I respond initially to most of the posts and ensure they are passed to the appropriate team whether they are compliments, observations or grumbles. It is important to make sure all issues are addressed and I try to encourage that to happen for all the posts as required.

Submitted on 01/02/2018 at 13:24
Published on Care Opinion at 13:34

picture of Eunice Goodwin

Dear Loving daughter 12,

Thank you so much for contacting me off-line. My heart goes out to you and your family, as I have said on this forum many times before, the unknown is so difficult to handle.

You consultant is committed to taking all the necessary steps to reach the fastest conclusion for your mum.

I suspect this may be of little solace for you both at this moment in time, but we will be reviewing the process your mum has gone through with a view to learning the lessons and improving the pathway for those to come.

Again, thank you for shining a light on this really important issue and again, may I say how sorry I am that you are still less clear about your mum’s diagnosis but I trust it will be in the very near future. if there is anything further I can help with, please feel free to contact me.

With kindest wishes,

Eunice

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