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Struggling to live a normal life

Posted By Craigy

"Struggling to live a normal life"

About: Alder Hey Hospital The Royal Liverpool University Hospital / Colorectal surgery

(as a service user),

I was diagnosed with FAP, Desmoid disease. Without too much detail, I developed tumours and polyps which can turn cancerous.

I thought one day everything ok, then bang, had to have my bowel removed. I have started to, after 2 years, learn to live a normal a life as I can but over the last couple of months seem to struggle. A DNA test was done to see if my son and daughter had the gene passed on and results came back that only my daughter was affected.

When we took advice from Clinical Genetics in Alder Hey we were so glad of the help and advice that we were given. She is now 18 and studying at the Liverpool university as a radiographer in the hope of helping other people.

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Responses

Response from Alder Hey Hospital 6 years ago
Alder Hey Hospital

Submitted on 13/11/2017 at 09:31
Published on nhs.uk at 10:33

Thank you very much for your comment, this has been shared with the Clinical Genetics team.

Please pass on our best wishes to your daughter on her course - maybe we'll see her working in the Radiology Department here at Alder Hey one day!

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from The Royal Liverpool University Hospital 5 years ago
The Royal Liverpool University Hospital

Submitted on 23/07/2018 at 13:29
Published on nhs.uk at 14:06

Thanks for your comments, we appreciate it. We hope you had a good experience here at the Trust and hope that we can continue doing well for you!

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