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"My mother feels rejected by the service"

About: Antrim/Ballymena / Continence Service

(as a relative),

My mother had been catheterized for many years when suddenly her bladder began to expel the catheter. After several failed attempts to fit a catheter that would stay (various sizes) the district nurses agreed to give mum a couple of weeks to heal from trauma to her urinary tract (caused by the repeated failed attempts) 

Mum was then referred to the incontinence service for support as she is frequently "wetting herself" and is currently paying a large sum of money each week to supply herself with Tena lady pants (pull ups). 

Mum does not work therefore this money is coming out of her limited income on benefits. Mum had been referred to Urology also for a scan of the bladder. This didn't highlight any issues. 

Recently Mum received a letter from the incontinence service saying that due to short staffing they are unable to review her case or offer any help at this time. 

This leaves my mother having to supply her own pull ups which impacts her life as she is using money that is needed to provide groceries and pay bills. This also negatively impacts her as she is unable to leave the house for extended times as she needs to be near a bathroom as she frequently requires personal care. For a grown woman to be made to feel as if she does not matter this is quite difficult for her family to witness. Mum feels as if she is a burden on the NHS and viewed as unimportant. This is damaging to her mental health and self esteem. 

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Responses

Response from Sarah Arthur, Patient Client Experience Facilitator, Patient Experience, Northern Health and Social Care Trust 6 months ago
Sarah Arthur
Patient Client Experience Facilitator, Patient Experience,
Northern Health and Social Care Trust
Submitted on 14/10/2024 at 15:31
Published on Care Opinion at 15:31


picture of Sarah Arthur

Hi funnyrp97,

My name is Sarah Arthur, I am the Patient Client Experience Facilitator for the Northern Trust, please see the response, below, from Deirdre O'Brien, Continence Manager.

Sarah

Hi funnyrp97,

My name is Deirdre O’Brien I am the manager for the continence service in the Northern Trust. I am sorry to read of your mother’s experience of continence care recently and how this has affected your mother’s quality of life and self-esteem.

I want to apologise for the response letter your mother received from my service, stating we were unable to review her case or offer any help at this time. This is not the standard of care we aim to achieve. All referrals received are first triaged by either myself or one of the continence advisors. If a referral is accepted we specify whether it is urgent or routine and what clinic the service user needs to attend I.e. General or Specialist clinic. In some circumstances where a service user is unable to attend a clinic we offer a domiciliary appointment. Our normal process once a referral has been accepted is to send out an acknowledgement letter along with self-assessment forms to be completed and returned. Once these forms are returned our aim is to book an appointment as soon as available. For service users triaged for general clinic they generally can be seen before or within the targeted 13 week time frame. At present due to demand for the service those triaged for the specialist clinic have to wait longer for an appointment and would be issued another letter to make them aware of the extended waiting time.

I would really appreciate the opportunity to speak to you to learn more about your mother’s experience and arrange an appointment for assessment at our clinic. If you would be happy to speak to me I can be contacted on 02825635280.

In the meantime I will share your story with staff for learning and reflection.

I look forward to speaking to you,

Deirdre

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