"Lack of communication"

My Son with Downs had a major operation on his left leg on 28th March. When we got discharged we were told there will be 2 weeks and 6 weeks appointments from the operation date, to see consultant. Got letter and my mft appointment on 19th Friday. My Son was all excited to see someone who is going to take plasters and staples out. Today got 2 text messages and email for my mft to say appointment is cancelled. No explanation given or when the next appointment is. How can I explain to my Son with learning disability that we are not going to Manchester doctor tomorrow and when are we going ? Really not this extra stress I need. We have been home since 2nd April. Trafford General did not give us bed neither council, we have been sleeping on recliner sofa. Bolton council not been at all helpful or MRI. Where can I go where someone can understand my situation as a full time carer for disabled son who is only little mobile with walking frame and stuck downstairs. Desperately waiting to see medical professional after 28th March. No one has bothered to see how it is healing? Is it OK or not. Too many staples are there, is it not supposed to be taken out. I can see some green/yellow spot on plaster. If this gets infected who can we blame? Loss will be ours though. Do not want my disabled Son to suffer more. Mercy please 🙏