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"Endocrinology ignorant of autistic patient needs"

About: Chesterfield Royal Hospital

I have been attempting to get some important information from the Endocrinology department all week and they are not responding. I have contacted the Patient Experience Team who have contacted the department on my behalf to be fair to them; however, the Endocrinology department still refuse to meet my needs as an autistic patient and provide the information I require, to establish clarity and certainty due to me having a compulsion for completion and to ultimately alleviate psychological distress and avoidable harm.

My needs are inordinately simple to meet and yet the Endocrinology department, along with the hospital trust in general are alarmingly ignorant to the needs of autistic patients and significant training and improvements in this area is needed before somebody pursues a class action against them.

I am not looking forward to my Endocrinology appointment, when I finally find out when it is! If my experience in this review is the norm for demonstrable standards of professionalism, support and communication from Endocrinology towards a patient with specific needs due to autism, then I have reservations regarding their clinical acumen and competence and how this will impact my healthcare.

Please sort it out Chesterfield Hospital. Autistic patients have specific needs that must be met by law so start meeting them and start raising your game because autistic patients aren't going to put up with this any longer.

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Responses

Response from Clare Dowsett, Medicine and Emergency Care, Chesterfield Royal Hospital last month
Clare Dowsett
Medicine and Emergency Care,
Chesterfield Royal Hospital
Submitted on 22/03/2024 at 14:53
Published on Care Opinion at 14:55


Hello

I would like to apologise for your experience and that you feel your needs have not been met. We would like to look into your concern further. If you could you please contact the PALS team on 01246 512640 with your name and a brief overview and we can look into this further.

Kind regards

Clare Dowsett

Quality Governance Facilitator

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