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"I can say with certainty their efforts have helped me"

About: Adult Health & Support Services / Occupational Therapy ICST (Community Nursing, Physiotherapy, Occupational Therapy) / ICST (Community Nursing, Physiotherapy, Occupational Therapy) East Kilbride

(as a service user),

In late 2023 I had the misfortune to suffer a second stroke, the first occurring four and a half years ago.

Follow-up action by a home visit from the District Stroke Nurse persuaded me to attend a series of eight meetings with an Occupational Therapist ( Sarah) and Helen a Stroke Nurse. My initial reaction was that this was not for me!

In total seventeen stroke survivors attended, an eclectic mix, and after a couple of weeks I became aware that we experienced similar issues in the wake of our strokes. 

I thought that Sarah fully understood the issues we had and presented the course material in a sympathetic and professional way, ably supported by Helen. 

The first few weeks placed great emphasis on meditation techniques largely concentrating on "belly breathing and mindfulness" and I found this process  slow to develop beyond inducing a meditative state of mind. However, as the weeks progressed the group bonded and conversed freely and it became apparent that we all appeared to have adopted a positive approach to the course. My attitude changed from cynical to enthusiastic.

I'm acutely aware of current NHS funding issues, however it is my belief that one week towards the end of the course should be set aside to enable spouses & sweethearts to at least listen-in to our conversations when we discuss the legacy symptoms of our illness. Issues like over caring, under caring, fatigue and the many other changes that have occurred since our stroke. For those who take the trouble to attend, I believe it could provide valuable insight into lives that have suddenly changed.

In closing I wish to express my gratitude to Sarah, Helen and the peer support volunteers. I can say with certainty their efforts have helped me.

I would be grateful if after reading this you could pass it on to:

Positive Stroke Solution Group. Stroke MCN

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Responses

Response from Lesley Bodin, Deputy Head OT, South Lanarkshire University Health and Social Care Partnership 2 months ago
Lesley Bodin
Deputy Head OT,
South Lanarkshire University Health and Social Care Partnership
Submitted on 11/03/2024 at 18:04
Published on Care Opinion on 12/03/2024 at 08:57


Hello normagb63 thank you very much for taking the time to post your really informative reply - it gives great insight into your own difficult position and your willingness to have a try at the group on offer. Groups are often something we find out with the comfort zone We can see by your feedback how much you have invested into the group offer.

Your feedback has been shared back to the team and leads in addition to the suggestions which will be considered - groups are regularly reviewed to make sure they are as contemporary and relevant to those in receipt.

Finally, wishing you well in your ongoing recovery and thanks for the feedback which we so greatly value.

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Response from Catherine Brown, Care Group Lead- South Lanarkshire Community and Neurological Services, Occupational Therapy (OT), Health and Social Care Partnership 2 months ago
Catherine Brown
Care Group Lead- South Lanarkshire Community and Neurological Services, Occupational Therapy (OT),
Health and Social Care Partnership
Submitted on 12/03/2024 at 11:54
Published on Care Opinion at 12:13


picture of Catherine Brown

Hello Normagb63

Thank you so much for taking the time to tell your story.

It is wonderful to hear that you found the group helpful. Sarah and Helen will be absolutely delighted. I am sure those who attended benefitted from your input and support just as much as you did from attending.

It is also really useful that you have offered some suggestions around alternatives within the group that may be of use. The experience of those who attend is key to how services are delivered and I would like to assure you that your feedback will very much be taken into consideration going forward.

I will ensure your comments reach Sarah, Helen and their manager and would like to take this opportunity to wish you well in the future.

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