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The staff have been very supportive

Posted By Survivor59

"The staff have been very supportive"

About: General practices in Tayside Lancashire & South Cumbria NHS Foundation Trust / Stroke and rehabilitation services Occupational Therapy / Occupational Therapy - Neurology Outpatient Physiotherapy Services / Physiotherapy Neurology Outpatients Royal Lancaster Infirmary / General medicine

(as the patient),

I was hospitalised at Lancaster RLI in 2021 with an MCA stroke. Communication with family was atrocious and I had no visits re covid.

Discharged 2 months later in a wheelchair with stroke team visits at home with a home care package. The staff who visited were very supportive however this package was for 6 months only.

Couldn't cope with toilet & shower being upstairs so moved to Scotland. As I was staying initially with family, I couldn't continue with NHS care other than emergencies, as I couldn't register with a doctor.

Eventually got registered once we bought our bungalow & received further care at home until transferred to care at the physio unit & Stoke occupational therapy at Perth RI.

Physio session initially then referred to the local gym with occupational therapy still ongoing.

Throughout all of this, the staff have been very supportive however there is not enough of them  to provide the the frequency or continuity of care required.

Access throughout to my medical records has been a disgrace with them being absent from the system for 18mths+. Also different departments not having online access is unbelievable. 

I am truly thankful to the staff for saving my life & their patience & expertise. 

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Responses

Response from Victoria Sullivan, Care Opinion Manager, NHS Tayside 3 months ago
Victoria Sullivan
Care Opinion Manager,
NHS Tayside

Manage Care Opinion within NHS Tayside and project manage and facilitate change programmes, transformation and service redesign across NHS Tayside and its surrounding Health & Social Care Partnerships

Submitted on 26/01/2024 at 18:21
Published on Care Opinion at 18:21

picture of Victoria Sullivan

Dear Survivor59

Welcome to Tayside, and thank you for sharing your story. Thank you also for highlighting not only the complexities that were in place during Covid but also those that come with moving from one part of the country to the other while adapting to life after a stroke. It must have been a challenging time for you and we appreciate you taking the time to tell us about this.

It is unfortunate that there was little available to you here until you were settled in your own home however we're pleased to hear that once you could register with a GP, everything began to fall into place for you. Unfortunately, GP practices are not currently part of the Care Opinion subscription in Scotland as they are independent businesses. I'm sure the practice will be very pleased to hear about the ongoing support you have experienced from all services since you registered though, and the best way to do that would to provide feedback directly to the practice itself. Your Practice Manager will be able to advise you on how to do this.

With best wishes for your ongoing recovery.

Victoria Sullivan

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Response from Louise Stewart, Perth and Kinross Health & Social Care Partnership 3 months ago
Louise Stewart
Perth and Kinross Health & Social Care Partnership

Submitted on 31/01/2024 at 10:26
Published on Care Opinion at 10:41

Dear Survivor59,

Thank you for sharing your experience, during which it is evident this has been a very difficult journey. I am glad you found staff to be supportive and you are continuing to improve. If things change, you can self refer back into the physiotherapy out patient department - your GP surgery should have the forms.

Kind regards, Louise

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