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"Cancer operation and subsequent aftercare"

About: Oral Surgery & Medicine / Oral Maxillofacial Surgery Outpatient Department

(as the patient),

Operation on tongue and neck required due to cancer by maxi facial dept. Quite a long and difficult operation (c10 hours I believe).

During the nearly 2 years since the op, I've had to deal with a large amount of side-effects, many of which were never mentioned prior to the operation - to my mind the consultant has been economical with the truth. eg. when I ask why I have lost 50% use of one arm and shoulder and 20% in the other for an op on my tongue, it's just dismissed as nerve damage with no real interest in the fact that I believe they caused it.

In a recent meeting the consultant blithely recommended I become totally nil by mouth due to swallowing problems, without giving any consideration to the effect this may have on me.

Prior to the op, when post-op effects were being discussed, such a possibility was never mentioned - I was told my diet would have to change, which I understood, but not a total and complete end to any food or drink.

Frankly, I have been left very depressed after that dismissal and wondering what the point of continuing is.

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Responses

Response from Leaca Crawford, Senior Nurse, Specialist Surgery, NHS Tayside 3 months ago
Leaca Crawford
Senior Nurse, Specialist Surgery,
NHS Tayside

This member of staff work as a Senior Nurse within Ninewells Hospital

Submitted on 03/01/2024 at 22:07
Published on Care Opinion on 04/01/2024 at 10:32


Dear Neil524

We are very sorry to hear you are continuing to experience symptoms post surgery.

NHS Tayside values your feedback as it helps us improve the service we provide to our patients.

Please can you contact the Complaints and Feedback Team.

Telephone 0800 027 5507

Email: TAY.feedback@nhs.scot

So that we can investigate your concerns further.

kind regards

Leaca Crawford

Senior Nurse

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Update posted by neil524 (the patient)

Hi. You've asked me to contact the Complaints and Feedback Team, as I can't speak very clearly it's best to tell me what you would like to know further via email.

Thanks,

Response from Victoria Sullivan, Care Opinion Manager, NHS Tayside 3 months ago
Victoria Sullivan
Care Opinion Manager,
NHS Tayside

Manage Care Opinion within NHS Tayside and project manage and facilitate change programmes, transformation and service redesign across NHS Tayside and its surrounding Health & Social Care Partnerships

Submitted on 05/01/2024 at 10:54
Published on Care Opinion at 10:54


picture of Victoria Sullivan

Dear neil524

Thank you for getting back in touch, we're sorry the information we require wasn't clear.

In order for the Complaints team to investigate what you've told us in your Care Opinion story, we would need to know your name and date of birth. So that you don't have to resend all of the information above, it would be helpful if you could quote your Care Opinion username (neil524) when you email tay.feedback@nhs.scot, so that they are able to see this story and link it to you.

I hope that's helpful.

Best wishes

Victoria Sullivan

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Update posted by neil524 (the patient)

Hi

Sorry, but I am getting a bit fed up with this. I was asked to provide some feedback on my experiences - which I have done - and was assured it would be protected by anonymity. Now I'm being asked for further information and my date of birth - hardly anonymous.

So no thanks - I did what I was asked to do and if that's not enough, ok.

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