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"Didn’t feel I could ask for help"

About: St John's Hospital / Head and Neck

(as the patient),

Recently had surgery to repair hernias in lower abdomen. After surgery I told them I needed to pass urine but because of previous bladder surgery I have difficulty passing . The nurse said to go to the toilet, I informed them my legs felt numb. They said there was no reason for this. When I tried to stand I fell to the floor on my bottom, and the nurse began cursing.

Other nurses came and said there was nothing wrong with my legs and to turn over and get up on my knees. I said they must have numbed my abdomen and my upper legs are numb. They disagreed. Could not stand so they had to use a hoist (open back gown and no underwear).

Put back on to a bed . Pain was building up over next hour from urine retention. Buzzed and explained again bladder is damaged and I can’t pass urine. All this time being very mindful to be pleasant and considerate to the fact that I’m not the only patient needing care and I could tell they were starting to see me as difficult.

Had to buzz again as no one came back . Was told that not enough time had passed, surgery 9 am now 6 pm. Nurse came and said I should stand up and go to toilet, I told them I couldn’t, legs were not working properly. Quite unpleasant, said there was no reason for this. Started to get upset now with treatment. Knew legs couldn’t support me. The other nurse who was there when I fell came over. I asked for help to stand, that nurse put out a hand but was told not to, as they'll hurt me. Asked for a chair to pull myself up and support, they said no. Asked if there was a zimmer , told  I hadn’t been assessed so couldn’t get one. Crying by now with frustration and pain.

They wheeled through an open bottom commode which I pulled myself onto and was pushed past other patients with an open back gown and terrified my bottom half was visible below open bottom commode. Sat in toilet for ages trying to desperately pass urine . Pain excruciating. Taken back to bed . Again asking for catheter. Explained it has happened before and I only need help once and I usually can pass after . Was told they have protocols. I understand about infection risk but kept explaining I have bladder damage and the pain is excruciating.

They did a bladder scan and said there was just over 300 ml and wasn’t enough to need help and they would leave it a while. I started to vomit continuously because of the pain and whilst doing so my bladder started to void. I was incontinent and the bed and myself was flooded. Was told I didn't need a catheter now.

Later when night shift came on I asked for help to go to toilet and they gave me a zimmer! I asked for support also because I’d fallen earlier, they said they were told I’d just sat on the floor and if I’d fallen there would have been a report written. I was helped to toilet by staff and zimmer.

Couldn’t sleep, so upset and confused at treatment . Didn’t feel I could ask for help anymore to go to toilet so went myself with zimmer. When turning into toilet left leg gave way and I screamed out as I grabbed door and sink to break my fall. Nurses came and I felt so humiliated as now they looked at me like some kind of fraud.

Called husband and friend in distress. In the morning when new nurse came around and asked how I was I said how unpleasant the whole situation had become and I’d been polite and calm. Was told I did have legs numbed during procedure.

When husband came to pick me up they were unpleasant and said he should have waited and they would have brought me out , but how was he to know this? Had difficulty getting to the car as legs not cooperating.

Now home and just cannot believe this nightmare. Feel traumatised and so disappointed in the treatment by nursing staff. I was put in a very dangerous position. I could have fallen whilst being made to feel like an attention seeker, fraud and inconvenience . 

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Responses

Response from Mariska Vernon-Stroud, Patient Experience Team Lead, Patient Experience Team, NHS Lothian 5 months ago
Mariska Vernon-Stroud
Patient Experience Team Lead, Patient Experience Team,
NHS Lothian

I gather feedback from patients to recognise good practise and supporting improving services in NHS Lothian.

Submitted on 24/11/2023 at 16:03
Published on Care Opinion at 16:03


Dear Watters 34,

My name is Mariska, I am one of the team leaders for the Patient Experience Team.

Thank you so much for taking the time to share your story with us, it was a difficult story to read and to hear about your experience. I am very sorry that the care and treatment you received caused such upset and trauma. This falls short of the standard of care we seek to provide to patients.

We seek to provide a service where patients are treated with care and compassion, and their dignity is maintained throughout. I can see how you felt confused, humiliated and frustrated and I apologise for this experience and the distress it has caused you.

At NHS Lothian we seek to understand and learn from Patient Experience’s and as a result your story has been passes onto the relevant service managers and teams, who will respond further. If you would find it helpful for your experience to be investigated please contact the Patient Experience Team, either by email at feedback@nhslothian.scot.nhs.uk or by telephone 0131 536 3370 (Mon-Fri 9am- 2pm).

Please can I apologise again for what has been such a difficult experience.

Thank you again for taking the time to share your feedback with us as we really do value all feedback.

Kind Regards

Mariska

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Response from Agnes Ritchie, Associate Nurse Director, St. John's Hospital & Princess Alexandra Eye Pavilion, NHS Lothian 5 months ago
Agnes Ritchie
Associate Nurse Director, St. John's Hospital & Princess Alexandra Eye Pavilion,
NHS Lothian
Submitted on 24/11/2023 at 17:00
Published on Care Opinion at 17:00


Dear Watters 34 I am very disappointed to hear of the experience you describe whilst attending St Johns Hospital for a procedure. All patients should be treated with dignity and compassion and I am very sorry that this was not your experience. This falls short of the standard of care we seek to provide to all patients. I will raise these issues with the department direct. Once again I am very sorry for your experience and I hope that you are feeling better and continuing to improve.

Agnes Ritchie

Associate Nurse Director

St Johns Hospital

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Response from Gordon Mills, Deputy Associate Nurse Director, Diagnostic, Anaesthetic, Theatre, and Critical Care (DATCC), NHS Lothian 5 months ago
Gordon Mills
Deputy Associate Nurse Director, Diagnostic, Anaesthetic, Theatre, and Critical Care (DATCC),
NHS Lothian
Submitted on 27/11/2023 at 09:51
Published on Care Opinion at 09:51


Dear Watters 34,

I'm disappointment to hear about your experience in one of my areas. This falls short of our values and the person-centered care we aspire to deliver. I'm sorry this happened to you and I will look into this with the team directly. I see you are home now where I hope you are continuing to recover.

Best wishes,

Gordon Mills

Deputy Associate Nurse Director

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