"Two failed hospital admissions"

I am in my early 30's and suffer with a rare endocrine disorder adrenal insufficiency which is managed with daily steroids. Sometimes when I have an illness or infection my body cannot fight this off it by itself and my body goes into an ‘adrenal crisis’ which can be fatal.  

Unfortunately in October I became unwell with Covid and after a week of trying to fight this off at home I went to my GP knowing I needed extra IV steroids in hospital and my GP who knows me well arranged a hospital admission, they sent me home that night. Then 3 days later with more deteriorating, NHS out of hours sent me to A&E where again I was sent home.  

A further 5 days later I contacted my endocrinologist secretary as a final attempt by this point I couldn’t even walk and needed aided as I was on the verge of collapse and then was admitted for 5 days on high dose of IV steroids and fluids.  

I feel saddened and upset. I work in healthcare and I would not waste NHS time, and I do not want to be in a hospital bed, however I know my own symptoms and I worry in the future when this happens again and when I am going into crisis that I am going to be dismissed - as my blood cultures come back normal due to this being a rare disease.