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"Placenta accreta"

About: General practices in Tayside Maternity care / Labour Suite Maternity care / Obstetric In-patients

(as the patient),

In February of this year I gave birth to my beautiful daughter. She was born 7 weeks early due to placenta accreta which turned out to be at the percreta stage. Luckily due to the fantastic care I received at ninewells hospital in Dundee, the suspected accreta was picked up fairly early and a detailed plan was put in place for the birth. What I was shocked to discover is that not only is there no information about placenta accreta on the NHS website, it is not even mentioned as a possible complication in pregnancy. This was a terrifying experience to have and although all of the staff I dealt with were fantastic, I was shocked at the complete lack of information on the NHS website. This is a resource that many people access independently to read and find out more information about conditions they have, and to have no access to verified information from health care professionals and only to be able to rely on less reputable sources on the Internet was unsettling. I am aware that accreta is fairly rare, but those of us who have to deal with it deserve to be able to find and access reputable information and facts about the condition. I have been met with a lot of questions about what happened to me and have also had a lot of frustration, that even some health care providers don't know just how serious this condition is. I delivered my daughter via caesarean hysterectomy and was still asked daily on the ward how my lochia was, despite having no womb. I was sent 2 letters from my gp reminding me to come for a smear test despite them not only having my medical records but also phoning to inform them that I no longer have a cervix. I developed a UTI from having the catheter in and was asked when I provided a sample if I could be on my period since there was blood in my urine after literally just telling the nurse I had to have a hysterectomy. This condition is life threatening and terrifying and I really feel there should be more information and education surrounding it. I would also be more than willing to discuss my experiences with students or staff in order to provide more information and education.

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Responses

Response from Lee-Anne Abel, NHS Tayside 6 months ago
Lee-Anne Abel
NHS Tayside
Submitted on 02/10/2023 at 14:12
Published on Care Opinion at 14:12


Dear Smithy43

Congratulations on the birth of your baby. I hope you are doing well and are enjoying/adapting to life as a family with your daughter.

It is unusual for placental accreta and particularly percreta to be a feature in pregnancy and I appreciate how reassuring it must have been for you to feel you had a clear management plan in place as early as possible. Your positive feedback will be shared with our obstetric colleagues. I can hear from your feedback that you felt additional resources to support your independent reading around the topic of placental accreta/perceta would have been useful and I will share your feedback to our obstetric colleagues so they can consider how this may have been supported better.

I am sorry that you felt there was lack of understanding of your situation and you were asked questions that were not necessarily appropriately framed during your inpatient stay. I will feed this back across our midwifery colleagues for learning and reflection to ensure that the language used during postnatal assessment is more inclusive and individualised to the varying needs of those accessing our care.

Best Wishes,

Lee-Anne Abel

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Response from Victoria Sullivan, Care Opinion Manager, NHS Tayside 6 months ago
Victoria Sullivan
Care Opinion Manager,
NHS Tayside

Manage Care Opinion within NHS Tayside and project manage and facilitate change programmes, transformation and service redesign across NHS Tayside and its surrounding Health & Social Care Partnerships

Submitted on 03/10/2023 at 18:26
Published on Care Opinion at 18:26


picture of Victoria Sullivan

Dear Smithy43

Thank you for sharing details of your pregnancy and how the lack of information impacted your experience. We are sorry to hear about the experience with your GP practice with regard to a smear test and the uncomfortable difficulties this caused you. Feedback enables an organisation to reflect, identify areas for improvement and revise any processes as required. As each GP Practice is an independent business, we would recommend that you feedback your experience directly to the practice to enable them to do this. The Practice Manager at your GP practice will have a Complaints and Feedback Policy which will help explain this process.

Congratulations on the birth of your daughter - I hope you are enjoying life as a mum and she's bringing you great happiness!

With best wishes

Victoria Sullivan

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