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"Epilepsy journey 10 months on"

About: Dumfries & Galloway Royal Infirmary / Paediatrics

(as a parent/guardian),

At 14 weeks old our daughter took unwell 
What was happening to her was hard to tell
She was admitted to DGRI & the seizures began 
The scariest time ever was when she had an mri scan

She was diagnosed with epilepsy but it was hard to control 
It really exhausted the poor wee soul
“We’ll watch her tonight” the wonderful staff said 
They’d set us up a room with a proper bed 

After months of hospital visits we got the genetic test results and it was a shock 
We had a heartbreaking meeting with the Glasgow doc 
Now for the part I can hardly find the words to explain 
The AMAZING staff who literally keep us sane 

Their care and compassion is second to none 
From the start through until their shift is done 
Mental health is so important and they genuinely keep us sane 
Our sunshine through the heaviest showers of rain 

From the lovely domestics that have a chat while they do such a thorough job 
To the kindest health care support workers who’ve been known to hug me while I sob 
To the amazing doctors and nurses who fly through the door when the red buzzer is pressed 
The children’s ward staff are quite simply the best! 

Visits to hospital are just a part of our daughters story 
But as a family we celebrate her progress in all its glory.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Kirstine Burns, Senior Charge Nurse, children's ward, DGRI, NHS Dumfries and Galloway 10 months ago
Kirstine Burns
Senior Charge Nurse, children's ward, DGRI,
NHS Dumfries and Galloway

SENIOR CHARGE NURSE

Submitted on 27/06/2023 at 22:18
Published on Care Opinion at 22:18


Hi Sham82517, this has brought a wee tear to my eye. You are an amazing family and make our job very easy. We have all been part of your beautiful daughter's life over the last few months and will continue to be part of her life for the foreseeable.

I hope that you are getting a bit of respite just now, especially with the addition to the family and please do not hesitate to get in touch if you require any additional support.

Thanks again.

Kirstine B

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