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"Can't contact the Parkinsons nurse"

About: Community/District Nursing Service

(as a relative),

I’m trying to phone the Parkinsons nurse to cancel an appointment that has come though for my husband who will not be able to have the telephone assessment appointment because he is in hospital, recovering from surgery and experiencing post operative delirium. But I cannot get through to talk to someone. Even if my husband was available to answer the phone, he wouldn’t be able to answer any questions or have an assessment. When I ring the number on the letter the phone line is dead, and the only other number on the letter is the Care Opinion phone number.

He’s been in hospital at the Cumnock area rehabilitation centre for 7 weeks. I’m trying to cancel this appointment so it doesn’t go against us the next time.

The Parkinson’s nurse is part of the NHS, Ayrshire and Arran health board. the letter for this appointment came through a few days ago.

The appointment letter says it would be helpful if you could contact our appointment management team, and the phone number given is the Care Opinion number and the other one is a dead line, so there is no way I can get in touch and it’s really challenging, I’ve got enough to worry about with my husband.

I’ll have to take the letter to the nurse at the hospital and ask if they can maybe manage it there. I’ve done everything I can to try and tell them he won’t be able to have this appointment, but I’m stuck now. I think there needs to be a number on the letter that I and others can easily ring to let them know if someone cannot have this appointment.

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Responses

Response from Pamela Gibson, Patient Experience Facilitator, Nursing, NHS Ayrshire and Arran 11 months ago
Pamela Gibson
Patient Experience Facilitator, Nursing,
NHS Ayrshire and Arran

Monitor stories and provide administration for NHS Ayrshire & Arran

Submitted on 11/05/2023 at 17:03
Published on Care Opinion at 17:03


picture of Pamela Gibson

Dear limabd34

Thank you for reaching out to us via Care Opinion.

I am sorry to hear that you are having trouble cancelling your husband's appointment on the number provided on your husband’s appointment letter.

I have contacted the Parkinson’s nurses on your behalf and they have advised that the number on the letter is for the central appointments department. I will contact them to alert them that the number they have provided would appear to be inactive.

The Parkinson’s nurse I spoke with has asked if you can call them direct on their voicemail number - 01292 665628 and leave your husband’s (the patient) name, date of birth, your contact details and details of the appointment that your husband is unable to attend and someone from the Team will call you back.

Kind Regards

Pamela

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