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"Dangerous practice "

About: Frimley Park Hospital (Frimley)

My baby was born with congenital hypothyroidism and should be seen at a maximum of 6 monthly to repeat bloods and check on medication being at the correct level. Unfortunately so far they have never been seen in the correct time frame. My child has failed to gain weight for the last 5 months and are no longer on the centile charts at all. My partner has tried to reach the consultant many times via phones and emails explaining the situation and begging for advice but has been ignored. The hospital is aware of the poor weight and moving off the centile chats as they have been the ones weighing them! This month my child’s appointment has once again been cancelled and moved to another 6 months away meaning their condition will have been unchecked for over a year. Which I have been advised by an endocrine specialist is dangerous especially for them as an infant and can have repercussions for physical growth and brain development. Very dangerous practice and placing child at significant risk of harm.

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Responses

Response from Frimley Park Hospital 13 months ago
Frimley Park Hospital
Submitted on 11/04/2023 at 14:47
Published on nhs.uk on 13/04/2023 at 09:24


Dear Anonymous,

Thank you very much for taking the time to share your comments about Frimley Health.

The first thing is to offer my sincere apologies on behalf of the Trust that you find yourself in this situation – it is clearly not the level of service or patient care that we aim to deliver or that you should expect from Frimley Health.

While I cannot comment on the particulars of your case in an open forum if you would like to email either fhft.palsfrimleypark@nhs.net or fhft.patientexperience@nhs.net we will be able to investigate your situation more fully.

Kind regards,

Alex Jackson, Patient Experience Manager, Frimley Health Foundation Trust

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