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"It was our last chance"

About: North Devon District Hospital / Medical Assessment Unit North Devon District Hospital / Radiology (X-ray) South Molton Medical Centre

(as a relative),

In May 2022 I took my father, who is in his late 70's, to an MAU appointment in the hope that someone would finally listen and not dismiss my father as yet another old man with a slight cough. At this point it had been 5 months of decline; from walking several miles a day for many years, my father could hardly stand or walk and was losing weight as he could not eat or drink properly. We feel like no one was taking us seriously and the inevitability of what was happening was infuriating. He was a man who (now) looked old, and this is how he had been seen; no one assessed him in context.

I was very angry at the GP surgery and referral process which had preceded the fortunate chance meeting with the last GP he had seen. It was obvious to me that whatever the underlying cause, my fathers chances of survival were rapidly diminishing and as many know, a lot of time is wasted with medical appointments/tests/referrals process which all take '2 weeks' ( 2 to organise, 2 to happen, 2 to see the results). I feel it was only a matter of time before he was going to starve to death if something did not change. 

My words when we finally got to MAU in Barnstaple that day were not altogether friendly; I was angry at my father seemingly being left to die. Despite this, the change that took place that day was nothing short of a miracle. They were able to do what no one else had; listened. Took us seriously. Looked past the 'old man'. They did not follow a textbook script, and took some action; made something happen. They delivered a result, and gave hope.

The result was a desperately needed whole body CT scan taking place that day and uncovering a very significant issue which had thus far been completely unknown; an enlarged spleen measuring around 16cm in diameter. Finally, we had something real. Finally we were not treated as if we were making things up.

I don't know what magic was worked to get a CT scan that day, but it was not booked to happen and we know how impossible it is to get one normally (why??). It is no exaggeration to say that had they not secured that CT scan, my father may not be alive today. The MAU department saved his life by making sure he could no longer be ignored as just another 'old man'.

Please can someone in the health service give more support to the teams of people involved in MAU? Give them the tools and resources they need, including all the little things like the right needles they want to use to take blood efficiently when a patients arm is already full of holes and their blood pressure is non-existent.

My father should never have been left as long as he was and despite the positive outcome for him so far, it has been a long and complicated road which could have been far less of a burden on the healthcare system if a diagnosis had been made earlier.

We need a lot more people like the staff here if the health service is going to assess patients more promptly; it would pay dividends.
Thank you everyone involved in the MAU, but in particular Helen; you made all the difference. My father is back walking the hills with the dog again.
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Responses

Response from Helen Wilson, Advanced Clinical Practitioner in Acute Medicine and Same Day Emergency Care (Northern Services), Medical Assessment Unit (Northern Services), Royal Devon University Healthcare NHS Foundation Trust 13 months ago
Helen Wilson
Advanced Clinical Practitioner in Acute Medicine and Same Day Emergency Care (Northern Services), Medical Assessment Unit (Northern Services),
Royal Devon University Healthcare NHS Foundation Trust

I work as an Advanced Clinical Practitioner on Same Day Emergency Care.

Submitted on 27/03/2023 at 12:12
Published on Care Opinion at 13:20


picture of Helen Wilson

Thank you so much for taking the time to feedback on the service and your fathers journey. It can be so frustrating and scary when you have a family member deteriorating before your eyes. I'm sorry it was such a difficult journey for him but I am so pleased at the eventual outcome. As we are often the starting point for patients we don't always get to know what happens after.

I will feedback to the team and let them know your father is walking the hills again! Its truly wonderful news.

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Response from Gill Kite, Superintendent Radiographer/Radiology Governance Lead (Northern Services), Radiology, North Devon District Hospital (Northern Services), Royal Devon University Healthcare NHS Foundation Trust 13 months ago
Gill Kite
Superintendent Radiographer/Radiology Governance Lead (Northern Services), Radiology, North Devon District Hospital (Northern Services),
Royal Devon University Healthcare NHS Foundation Trust

I am a Diagnostic Radiographer with many years experience of working, and imaging patients, in all areas of the Radiology department. I am also responsible for the governance in Radiology and so make sure that we are compliant with the many ionising radiation regulations that dictate what we can and can't do in radiology, keep the patients and staff safe and ensure we are practicing safely. I also deal with our policies and procedures and oversee compliments, complaints and quality.

Submitted on 27/03/2023 at 14:01
Published on Care Opinion at 14:01


picture of Gill Kite

Dear bonanzafg56,

Thank you for taking the time to leave feedback about your father's experience, I'm sorry that it was so difficult for him, you and the rest of his family, although wonderful that he is now fit and well again and doing the things he loves to do.

As you can imagine the CT scanning department is one of the busiest areas in our department and unfortunately demand outweighs capacity greatly as our long waiting list sadly demonstrates; we do hold a couple of appointments every day for urgent inpatients and are able to fit in other emergencies as they arise between other patients and so urgent patients can usually be accommodated as they present. We also have the visiting mobile CT Scanner several days a month that takes some of our routine and cardiac scans and so is helping to reduce patient waits further.

I will pass on your feedback to the CT team.

Kind regards

Gill

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