"untreated lymes "
About: NHS Ayrshire & Arran NHS Ayrshire & Arran
Posted by corky69 (as ),
im totally unhappy with nhs. it took 3years to get diagnosis from nhs of me, cfs when I actually had lymes 3 positive blood. I was also told they were negative and I didnt find out my positives were overlooked by gps and hospital. im now an invalid use bath aids and need help to bath. I suffer muscle weakness in legs and arms use chair only get from bed to toilet, suffer painful shooting pains in all muscles and in my joints, sensory paresthesia burning numb patches in my muscles, brain fatigue. im in bed more than im up, chest pains irregular rythmn due to lymes. these main symptoms have ruined my life.
This illness was of gradual onset. Took a reducing of mobility year by year which was watched by nhs. im 6 years in to this I was not gave a spinal tap despite my lose of mobility. iv had tasts mri etc infectious disease expert suspected chronic lymes but did no further tests. I was diasgnosed with me, cfe before they eventually found theyd overlooked positive lab results years later.
so I need to find a infectious disease expert to give me a spinal tap privately and I want longterm antibiotics. If you are a GP and see this can you help me? Can anyone advise me of a infection disease expert in Scotland.