"Treatment at my convenienc!"

About: Leicester Royal Infirmary

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I had an RTA in 2007 leaving me with nerve damage and constant nerve pain in one arm. My treatment gives me partial relief for up to 6 weeks but can only be administered every six months. I have ongoing discussions with the clinic to get treatment at my convenience (not the clinics convenience). This has and is proving to be more and more difficult to achieve. I have managed one such co-incidence in 5 years as a patient. On one occasion the clinic discharged me without consulting me as I had gone 6 months without treatment. and I had to go through the lengthy process of being referred again by my GP. That situation appears to have now been resolved if I pass this 6 month period. Apparently, powers outside this clinic can cancel clinics if they are under-utilized. This is not putting patients at the top of their priorities. If this were a commercial organization they would be bankrupt as customers would not tolerate this and would go elsewhere. We the "customers" have no such choice. I have written to the Chief Executive expressing my concerns. Staffs at the Clinic do a sterling job considering the external constraints.

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Response from Leicester Royal Infirmary

Dear Laurence, Thank you for taking your time to leave your comments. In response to the specific points of concern that you have raised regarding management of your pain appointments and the frequency of the treatment you receive, an investigation has been carried out by Mrs Anne Brooks, Operational Manager for Pain & Sleep Disorders Services and Mrs Linda Chesterton, Administration Manager for Pain & Sleep Disorders Services. Both Mrs Brooks and Mrs Chesterton are very sorry that the length of time you are waiting between your IVL infusion appointments is proving to be a dissatisfactory experience for you and that you feel let down as a patient since this frequency is not providing you with adequate control of your pain. We understand you should have received a response in full from the Trust. If you have not received this please contact me on 0116 2588224. Thanks

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