"Not Listened to"

About: National Hospital for Neurology & Neurosurgery, Queen Square

Anything else?

I was referred as a precaution and was astounded at the diagnosis which was made in 5 minutes, based on what I said I thought I had experienced. I emphasised that I was not really sure about what had happened (I'd been feeling light headed at work). With a vague description of symptoms they announced in a very matter of fact manner that I had elipepsy. Some physical tests such as reflexes and an ECG were carried out but that was it. I tried to explain the reasons behind my illness but these were not listened to. I feel as though they put words into my mouth to suit their own opinions. Lists of symptoms which I didnt agree with were used as a basis for their conclusion. I am left wondering if I have been diagnosed or not. They never said! I was in and out like being on a production line

I dont agree this is the right way to do things and question the level of reliability and validity in their diagnosis.

It was pointed out that I could get a second opinion if I like but the consultant waved the idea away and said they'd just say the same thing anyway. They then stood staring at me silently. I made a few comments and left. I was shocked at the way I had been treated and even more shocked with their lightening diagnosis and refusal to listen to my questions about things.

On the positive, I was given a piece of paper to hand in at reception so I could get an EEG and MRI. Even then, I wasn't absolutely sure where to go. I was upset and scared that I could have been misdiagnosed. At one point, the doctor, who never told me their name, asked me if I wanted some tablets! I declined as I didnt think it serious enough.

IF I have this condition , fair enough, but to come to this conclusion with very sketchy evidence is beyond belief for me. I am now pursuing a second opinion elsewhere, although I still intend to have the EEG and MRI at Queens as I've waited long enough, (I'll get copies or get them transferred but I'm not holding my breath this will be done).

My advice to anyone going here would be to take someone with you and to be very careful what you say.

I've looked into this and there needs to be a lot more research into issues such as family history, witnesses to the event etc.. before anyone can be diagnosed like this.

Even my GP said I got a poor service and I believe its also thanks to my GP I got the EEG and MRI brought forward.

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Response from National Hospital for Neurology & Neurosurgery, Queen Square

Thank you for taking the time to notify us of your concerns. I am extremely sorry to hear that you have had cause to complain. I have fedback your comments to the Epilepsy Team who would be disappointed to hear of your experience. As a Trust we take patient comments extremely seriously and would be grateful if you could make contact with us so that your concerns can be investigated. Please contact our Patient Advice and Liaison Service on 020 3447 3042 or by email to pals@uclh.nhs.uk.

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