"Adult Autism Spectrum Condition (ASC) assessment"

About: Sussex Partnership NHS Foundation Trust / Working age mental health care (community)

(as the patient),

I went for an assessment which failed to diagnose me and was very cursory. I asked for a second opinion. Both doctors were present that time and I felt they clearly they had no intention of diagnosing me and brushed off my explanations of traits and test results. They listed separate labels which all should have added up to a diagnosis of an autism spectrum condition. I then went to see two private professionals who diagnosed me with Asperger's. It seems to me for some reason the NHS is trying to avoid diagnosing adults on the spectrum. I have accumulated an overwhelming amount of evidence, clinical and medical (including heritability/genetic evidence) which to me categorically indicate I have Asperger's. I complained to PALS and I felt I was given a ridiculous reason for them denying me a reassessment. My next step is to go to the Health Ombudsman.

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Response from Sussex Partnership NHS Foundation Trust


Thank you for taking the time to post and I am sorry that you have had a bad experience of our services. I am also very sorry also for the delay in responding to your comments.

As you are not satisfied with the response you had from PALS your next step is to make a formal complaint - it may be that you have already done so but without following through this next step in the process the Ombudsman will not consider your representation. I hope that you reach a satisfactory resolution quickly

Kind regards

Rachael Kenny

Patient and Public Involment Manager

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