"Autism Spectrum Disorder (ASD) diagnosis at the CAMHS ASD SERVICE at BoatHouse, Festival Park, Stoke On Trent. NHS "
About: North Staffordshire Combined Healthcare NHS Trust / Child and adolescent mental health North Staffordshire Combined Healthcare NHS Trust Child and adolescent mental health ST2 8LD
Posted by worried mummy (as ),
I had an appointment with CAMHS-ASD service at The Boat House.
After my first meeting I felt that I would be listened to and that my child would have a full ASD assessment.
After collecting information from myself, school and others who were involved with my child, I was expecting a full assessment to take place. After the first appointment, they asked me to return with my child for a 2nd appointment where my child was taken in another room where they assessed him within 40 minutes. They then called me into the room to tell me that my child was not on the ASD spectrum and that we were discharged. There was no time for me to talk about the results as they were running late. I was also told that 'we still see children up to the age of 18 years and that I could get another referral back into to the ASD service in the future.' They had just told me that my child wasn't ASD and then they say that!?
How confusing! I feel that my child is on the ASD spectrum and the Boat House have said that there are traits. The behaviours that my child displays have been displayed since around toddler age and my child will soon be entering High School. Therefore this problem is not going to disappear.
My child has been referred to this service before and we had the same response.
I do not feel that the service has done enough for my child. The observations should be more frequent instead of just one school observation. They did not see my child at home and they spent only 40 minutes in clinic with him.
I feel that I am left to cope with the problem on our own with no understanding of why my child has ASD traits or how to deal with the way that my child sees the world.
We are left to feel like bad parents who cannot deal with their child who frequently has bad traumatic outbursts and usually obsessions.
We will be using more of the NHS's money by going back through the service again and again instead of having a diagnosis. If there was an ASD diagnosis, then we can get support from other services and charities who will help us to understand our child. There are groups that we can join that are for parents and children.
My child has very poor self esteem. Myself, I feel that I'm not a good parent and I've also lost confidence in myself and the service.