"Being a carer for my husband, on dialysis"
Posted by Malka (as ),
I live in North London and am a carer for my husband, who was taken ill in April 2010. He was diagnosed with Multiple Myeloma and suffered Renal failure in March 2011; he now dialyses 3 times a week.
The specialist Myeloma nurse was superb, giving support to myself and my husband telephoning me at home; this was not at a local hospital. My husband transferred to the local hospital in May 2011 to continue his dialysis.
The 12 journeys a day are exhausting and there is no help with transport, this is one of the hardest physical aspects and also very frightening if I am not well as it is imperative that my husband has his dialysis.
The emotional aspect is devastating; being isolated, feeling very alone and unsupported; despite various agencies out there, they don't seem to address one's needs.