"My bladder problems remain unresolved"

About: Rotherham Hospital / Urology

(as the patient),

I have had problems with my bladder for 20 years. I have not been successful with exercise (physio, pelvic floor). My problem is intermittent. Doctor's insist on labelling me with everything I go to the surgery with, including Asthma, as anxiety.

I have never knowingly been checked for infections that might be the cause but informed that I have an irritable bladder. Of all my treatment my worst experience has been with the Rotherham urology department.

I've been abused when I rang to ask for an appointment because I asked if the specialist had returned from vacation by someone covering the phones in the morning.

In 2010 I called to the GUM Rotherham and received antibiotics for bacterial vaginosis and most of my symptoms cleared up (being woken in the night because of bladder pain being one of them which I have had for years). I informed the specialist of this.

I had a cystoscopy approximately 2010, Rotherham. I had my urine test for infections, not told what the tests were or even if I was clear and to wash with a medicated soap pre-operation. I discovered post-op I was sharing a ward with cancer patients. I already feel embarrassed at my condition and this caused me to break down.

I was told that they had stretched my urethra. I know I don't have a valve problem, but trusted opinion when I was required to go for another urodynamic test. I've had three previously over the years and all were different.

I was scanned whilst my bladder was filled and emptied. Whilst in the waiting room I was humiliated as the chair you sit on during the test, was pushed by me and I'm being treated like a time waster. I stated that I wanted to leave whilst in the treatment room, but was talked into staying and then to sign a consent form, under stress.

During the procedure, they placed a catheter in my urinary tract and I felt a needle being inserted. I was not informed that they freeze you! The test continued, I urinated into a bucket, the technician? Stated "I bet you wished that your bladder performed like that all the time". This test is just set up to humiliate and make me go away. I did contact my primary care department at the time this happened, they called me back and I said I'd let it go.

I was supposed to return to the Urology clinic as I still have problems, the thought of that makes me feel sick. Specialists are deferring me with wasteful damaging treatments which are just making me worse.

I also keep getting, you are a complex case. I am complex case because I'm not getting resolution. Originally when I was 25 years old I was told I was too young for intervention now I get told to lose weight. I was slim when my problems started.

I am yet again waiting for counselling because of stress and anxiety.

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Response from Grace Oldfield, Patient Involvement Manager, Rotherham NHS Foundation Trust

Dear Ima Objetos, thank you for posting the comments of your experience of care in the Urology Department and highlighting the concerns that you clearly have. I can assure you that the Trust takes all patient feedback extremely seriously and was very concerned to read of your experiences and on-going issues. To allow us to identify and review your concerns we would strongly encourage you to contact the Trust Patient Services Department either by telephone on 01709 424461 or our dedicated patient feedback email on: feedback@rothgen.nhs.uk to enable a thorough investigation and a response against the points you highlight is provided for you. Thank you for your posting on Patient Opinion.

With best wishes,


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