"Being at Hinchingbrooke Hospital with Parkinson's disease"

About: Hinchingbrooke Hospital / General medicine

(as the patient),

Q: While you were in hospital did you get your Parkinson's medication on time?

A: Most of the time.

Q: Tell us about your experience of getting your Parkinson's medication when you needed it while you were in hospital. Did staff understand the importance of getting it on time? Did they talk about it? Did you have to mention it first?

A: They had been trained but because they were so short staffed, in my opinion, they could not put what they had been taught into practice.

Q: Tell us about your experiences of being able to manage your own Parkinson's medication in hospital.

A: This was managed by the staff as my husband was too confused to assist.

Q: Tell us if you have any other comments about your stay in hospital.

A: I think that many of their processes hindered good care. The pharmacy was only open at set times and when they found there was insufficient Parkinson's medication - my husband had to go without!!! This happened on the assessment unit and the main ward.

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Response from Lavinia Fernandes, Professional Engagement Officer, Parkinson's UK

I read about your experience with interest on the Patient Opinion website and would like to bring your attention to the Parkinson’s UK campaign Get it on Time. The campaign was launched several years ago to seek ways to improve people with Parkinson’s getting their medication on time; every time.

As part of the campaign in 2012 being led by the Professional Engagement and Education team at Parkinson’s UK, we have launched a public on-line survey regarding people’s experiences of getting their medication on time when they were admitted to hospital or a care home.

We want to hear from people with Parkinson’s, their families and carers. To find out more about the survey and take part, please go to www.parkinsons.org.uk/getitontimesurvey.

We can also help you complete the survey, should you have any problems, by calling 020 7963 9365. The closing date for the survey is 31 August 2012.

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