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"A short battle with cancer"

About: University Hospital Southampton NHS Foundation Trust

My sister died on 1 February 2019 after being diagnosed with lung cancer with metastasis to the lymph nodes spine and brain. Everything happened so quickly but my sister was coherent and sitting up in her hospice bed for many weeks before she died. Treatment offered for the spine was in the end not given despite the fact that that this was the absolute worst of her symptoms and cause of pain and discomfort, and I think should have been given much earlier, but sadly my sister was hospitalised and due to this occurring over the Christmas period nothing other than palliative care was offered.

We did eventually see the oncology head early January and after learning that my sisters first biopsy had been too small to detect too much I insisted on another in order to detect any mutations which could be targeted, with the agreement of my sister of course. Her lung capacity was good according to the doctor and she had no brain tumour symptoms. He agreed to some radiation to the spine to alleviate the pain and lack of movement then at some point weeks later decided against radiotherapy which my sister was not informed of by him but a hospice doctor who was investigating why my sister had not received a date for her radiotherapy.

Her final telephone messages to me were that she had absolutely no confidence in her oncology team head doctor, who I shall not name at this point in time. I believe she willed herself to die a week after that message was sent to me. All she wanted was a little extra time to spend with her sons, not to live for years, and I believe this little time could have been granted had she been afforded much better treatment.

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Responses

Response from University Hospital Southampton NHS Foundation Trust 5 years ago
University Hospital Southampton NHS Foundation Trust
Submitted on 25/03/2019 at 16:29
Published on nhs.uk at 17:06


Thank you for taking the time to share your feedback at this difficult time, please accept my condolences for the loss of your sister. If you would like to speak to us further about your sister's experience, please do contact our Patient Support Services team on 023 8120 6325 or patientsupportservices@uhs.nhs.uk

Kind regards

Laura White, Patient Insight Manager

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