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"Shocking!!!"

About: St Marks Hospital

My son is 10 years old & has severe mental & physical disabilities the wheelchair service has struck him off their books because they say he can “walk” which is utter nonsense, he has no idea what day of the week it is let alone where he is walking to. Yes he can take a few steps but that’s it, he wears splints as hyper mobility. It is true we do not use the chair in our home as our house has not been adapted & I don’t want him confined to a chair when he can crawl around safely! However when he goes out he needs a vehicle also when visiting other indoor spaces he needs transport. They won’t even assess him to help us find a suitable chair for him, which we would pay for.

life with a disabled child is hard enough without this added pressure - feel totally let down!!

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Responses

Response from St Marks Hospital 5 years ago
St Marks Hospital
Submitted on 07/01/2019 at 17:13
Published on nhs.uk at 18:06


Dear Sir or Madam,

Thank you for your posting and I am sorry to learn that your son is finding it difficult to obtain the support that he needs. Please contact me, in confidence, so that we can discuss this in more detail and provide you with a full response.

Alternatively, you could contact your local Healthwatch organisation for assistance. Healthwatch gives people a powerful voice locally and nationally. At a local level, they work to help people get the best out of their health and social care services - whether it's improving them today or helping to shape them for tomorrow. Healthwatch can be contacted via our website; www.berkshirehealthcare.nhs.uk

Yours Sincerely,

Trevor Lyalle

Patient Advice & Liaison Service

Tel: 01189605027 e mail: bht@berkshire.nhs.uk

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