"Experience with Parkinson's at Hull Royal Infirmary"

About: Hull Royal Infirmary

(as the patient),

Tell us about your experiences of getting your Parkinson's medication when you needed it while you were in hospital. Did staff understand the importance of getting it on time? Did they talk about it? Did you have to mention it first?

The first 6 hours I didn't get my medication, as they had taken it from me, I was told to see the Parkinson's specialist first; after 8 hours I was told he had gone home, if it hadn't been for my wife I don't know what I'd have done, it made me very ill!!

Tell us about your experiences of being able to manage your own Parkinson's medication in hospital.

I felt like they don't let you as it was taken from me, and some of the time it was up to 2 hours late when they drugs trolley came round. I hope I never have to go into hospital again.

Tell us if you have any other comments about your stay in hospital.

After 2 days they finally seemed to get it together and I was feeling better but my wife still had to shower me and make me get my medication on time. The day I came out they stopped giving me medication at 8.30am, and it was 2.30 before I got it.

Do you have a similar story to tell? Tell your story & make a difference ››


Response from Hull and East Yorkshire Hospitals NHS Trust

Dear hiker552

Many thanks for placing your posting on the Patient Opinion website. We are sorry to read of your recent experience and we will ensure that the Specialist Nursing Team for patients with Parkinsons Disease are made aware of your comments. If you would like to discuss this matter further with us, please do not hesitate to contact our Patient Advice & Liaison Service on (01482) 623065 or email on pals@hey.nhs.uk .

If you would like to become more involved in decisions about local healthcare, we are recruiting members. By becoming a member you receive our quarterly newsletter, find out more about your local NHS and help us improve local services. You can also attend our ‘medicine for members’ sessions and respond to questionnaires. You don’t need any special skills or experience to become a member; you just need an interest in local health services. There is no commitment, you can get involved as much or as little as you choose.

For more information please either email your.nhs@hey.nhs.uk or telephone the Corporate Affairs office on telephone number (01482) 675165.

Thank you once again for taking the time to provide us with your views on local services.