I'm not sure if anyone will take the time to address this. After my recent experiences I'm not hopeful I will ever feel normal again.
I started to get out of breath overnight and went to my GP who said it was a chest infection and I was given antibiotics. Following this there was no change so I was given stronger antibiotics but still no change so I went to A+E and found out it was a problem with my heart and high blood pressure. Once a few procedures were done and my blood pressure was a bit better I was discharged and told by one of the nurses that I needed to be moved because the cost I'm causing on the heart ward and a surgeon said I would be operated on within the following 2 months.
I was given a letter with a date to go back a year later and trying to contact the surgeon to ask why was impossible and so was making a complaint. Then I received a letter to say go back in 6 months so I did and I was told that my heart was improving I now have a different surgeon who will be taking this on and it isn't much of a problem. Following this appointment I had another one where they told me I needs to see a dentist I expressed my fear for dentist but that didn't seem bothered and told me to book a appointment which I cannot do because of the heart pulpatations and fear I have just entering the place and the smell of the dentist. My consultant has again changed and I am not even sure who is going to be operating and who I need to speak to for any concerns.
I received a letter although I was told I wouldn't be seen till early 2019. I went pre-op and it wasn't that reassuring at all. It was someone different again and I am still unaware of who will be doing what. We spoke about different options for surgery but not the dangers that come with them like if you smoke and I felt like the option was chosen for me.
My breathing and energy levels have been deteriating yet then wanted to do a breathing test for the amount of anaesthetic I would be given which won't be for several months but I feel that it'll be longer because of the false promises I feel I have been giving for this operation and I was told again I need to visit a dentist and have a teeth check done before my operation which I still can't bring myself to do. All my teeth procedure have been done under anaesthetic and I feel like I am not receiving any support with this so must I stay like this forever having my heart and life deteriating like it has done. I was sent to get a blood test done and I thought the place looked dirty and the position I'm in at the moment I am not in a position to risk becoming ill any further.I hope this can be brought to light because I don't feel that the NHS complaints procedure is straight forward and helpful as the claim to be and I have found the PALS service is just as hard to get in touch with and actual try and receive any help I feel I am fighting a losing battle.
"Heart surgery"
About: University Hospital Southampton NHS Foundation Trust University Hospital Southampton NHS Foundation Trust Southampton SO16 6YD
Posted by Heartpatient1969 (as ),
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