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"Pointless and distressing"

About: Adult Acute Newcastle East

The Consultant from this team is so inconsistent with me I never know whether he is going to help me or not.

My CPN "Care" coordinator does not know me and sees me once a month. Every time I see him he tells me how busy he is and makes me feel like he's doing me a favour by squeezing me into his diary. He subtly blames me that I am not doing enough to help myself. I am doing my best and he does not show respect for that.

I have long term severe mental health problems that make my life hell but I largely keep myself going with the help of other MH services, and just have pointless appointments with this team.

They gave me a support worker who talked about herself all the time and discussed completely inappropriate things including the state of her sexual organs with me. No one apologised or asked about the impact that had on me. I suffered extreme sexual abuse as a child.

This team ignore warnings of me going into crisis and do nothing.

Their "care" reviews are about ticking their boxes on their computers, nothing more. They talk to me about referring me to other services because they think I need them, but do nothing themselves. When those services aren't available, they do nothing to put relevant alternatives in place. They think I need intensive inpatient help for several months, but it's not available. What they offer me instead is 2 monthly appointments with the doctor and monthly meetings with my CPN. How can they say I need such a high level of help but do so little themselves?

If I went to a GP complaining of severe chest pain would they send me away with no help? Tell me to ring them when I am having a heart attack?

This is the equivalent of what this team offers.

Last year they sectioned me after myself and other people who were helping me told them for 4 weeks I was going into crisis but they offered no help to support me before I became so unwell I needed to be hospitalised.

They expect you to make yourself so vulnerable by explaining how you are, then ignore what you have said about going into crisis and don't offer anything but another appointment weeks later. All they do is write it in your notes.

This is not a resource issue because the appointments are largely pointless. So why waste money on them when the patient leaves feeling more upset and alone? I left my "care" review today with no crisis plan, no help, even though I am in crisis. And it takes alot for me to say I'm in crisis, make myself that vulnerable. So will they section me again in a few weeks time and pass the problem (ie me) onto inpatient services? Yes, that is a real possibility.

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Responses

Response from Adult Acute Newcastle East 5 years ago
Adult Acute Newcastle East
Submitted on 20/07/2018 at 09:22
Published on nhs.uk at 10:05


Thank you for taking the time to provide your feedback.

I am very sorry to see you have had this experience in one of our services.

As a trust, we always encourage feedback from service users and carers; we take complaints very seriously in order to help us improve services, to act on any issues swiftly and to share wider learning from these.

I would welcome a discussion with you to aid greater understanding of this.

My telephone number is 0191 2456837 Anna Williams, Associate Nursing Director, Community Services

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