"Disgusting"

They seem to jump to conclusions without no firm evidence doing treatment that is both unnecessary and painful to newborn babies.

It takes a lot to get them to listen once they have decided on what is wrong and the treatment.

It is totally unfair that babies admitted have parental control taken away when the parents are acting on their own instincts and could prevent unnecessary testing and medication given.

A lot of money is wasted on testing that no evidence supports a reason for this such as lumbar punctures on small babies.

When there is a problem that is not easily recognised but families have voiced their concerns over this it is brushed aside and made to feel you are neurotic.

I have had 3 grandsons referred or born in this hospital and the treatment as been appalling 2 being told they have serious health conditions when they don’t causing extreme distress for families and the other 1 that really does have major problems being told that there was nothing wrong, which lead to continual asphyxiation pneumonia until he was a year old and got to the right department to be treated and looked after correctly.

I would love to have a meeting with the consultants and a senior board member without any warning to listen to justifications.

I have also found out another family who has had similar issues so I know it’s not just us.

Perhaps if the consultants had no warning and were unprepared they may listen to what their actions have done to these babies.

I feel a complaint is a waste of time when I could be helping to look after the children as I know that the old boys network will come into play.