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"No Diagnosis = No Treatment"

About: Nottingham University Hospitals NHS Trust - Queen's Medical Centre Campus / Neurology

Consultants and Surgeons have a reputation for seeming to be cold & aloof.

Having seen 2 Consultants, and having symptoms for 2½ years.

All the usual tests that I had (numerous blood tests, nerve conductive studies, MRI scan of Brain & Spine, Lumbar Puncture) showed no diagnosis. So, I was referred to to a doctor for an answer. He did some quick reflex & strength tests and smugly declared that I had 'Neuropathy' - as if I didn't know that already.

He did not explain that we have different types of nerves, or which ones were affected in my case. He did not offer to do a nerve biopsy, which would have helped identify exactly what type of nerve problem I had.

He did say that he didn't think that it was a myelin sheath attack, but more likely a 'wiring;' problem. This is not helpful to an Engineer, who has a grasp of these things, especially after 2½ years research on the Internet.

His conclusion was simple. We don't know what you have, so we cannot treat it. He said that if I got any pain, to see my GP. If it deteriorated, than ask to be referred back.

His letter to my GP had 2 inaccuracies in it. One that my left ankle was 'sometimes' stiff. No! It is stiff all of the time. And that I didn't show any symptoms of weakness, but he did not press against the outside of my feet which offer no or reduced resistance.

All in all, a waste of time seeing the doctor.

I wonder where I can go from here.

I think that I shall demand a copy of my Tests and all notes, to take to another Neurologist after studying them.

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Responses

Response from Nottingham University Hospitals NHS Trust - Queen's Medical Centre Campus 5 years ago
Nottingham University Hospitals NHS Trust - Queen's Medical Centre Campus
Submitted on 01/05/2018 at 10:51
Published on nhs.uk at 11:06


Thank you for making contact with us.

I’m sorry to hear that you did not find your appointment to be helpful and felt that you did not feel sufficiently listened to or involved in your care.

If you would like to talk further about your concerns, I would be happy to speak with you.

Our PALS team can help if you are unhappy with any aspect of your treatment or diagnosis and would like advice on where to go next, or how to get copies of your notes.

You can contact them on 0800 183 0204 or by sending an email to PALS@nuh.nhs.uk.

Simon Parsons

Divisional Director, Surgery

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